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RealTalk MS

Health & Wellness Podcasts

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.

Location:

United States

Description:

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.

Language:

English

Contact:

310-961-4954


Episodes

Bonus: The MSVirtual2020 Conference

9/17/2020
This past weekend, 8,000 MS research scientists and clinicians gathered virtually for the joint meeting of the Americas Committee for Treatment and Research in Multiple Sclerosis and the European Committee for Treatment and Research in Multiple Sclerosis. Known as ECTRIMS, this year's conference was appropriately re-branded as MSVirtual2020. We're talking about great presentations on the MS prodrome (and we'll explain what that is and why it's important), when it might be time to...

Duration:00:41:37

Episode 159: Resilience and MS with Dr. Dawn Ehde

9/14/2020
You can't control the weather, but you can learn to dance in the rain. And developing resilience teaches you how to dance in the rain. My guest is Dr. Dawn Ehde, a clinical psychologist and professor of rehabilitation medicine at University of Washington Medicine. Dr. Ehde is an expert in understanding resilience, and she's joining us to explain why having resilience is central to improving the well-being of people affected by MS, and how to go about building your resilience -- even in the...

Duration:00:42:45

Episode 158: A Deep Dive Into MS Disease-Modifying Therapies with Dr. Scott Newsome

9/7/2020
Disease-modifying therapies are the cornerstone of any effective MS treatment plan. But with more than 20 approved prescription medications available today, the choices can seem overwhelming. People living with MS have questions -- Do you start out with a safe but less effective medication, or do you hit MS hard with a high-efficacy drug that may carry more risks? When is the right time to consider switching medications, and how do you have that conversation with your neurologist? Do...

Duration:00:37:17

Episode 157: The Future of Telehealth with Mei Wa Kwong

8/31/2020
One of the very few bright spots to emerge during the COVID-19 pandemic is the overall effectiveness and efficiency of telemedicine. And although people living with MS and their doctors have largely hailed telemedicine as a success, there are significant obstacles to overcome before it can become a permanent part of our healthcare system. My guest is Mei Wa Kwong, the Executive Director of the Center for Connected Health Policy, and we're talking about the things that need to happen...

Duration:00:27:02

Episode 156: Managing Cognitive Dysfunction in MS with Dr. Meghan Beier

8/24/2020
Whether you call it brain fog, cog-fog, or you don't happen to have a name for it, cognitive dysfunction affects more than half of all the people with MS. Joining me once again is Dr. Meghan Beier, a Rehabilitation Neuropsychologist and Assistant Professor of Physical Medicine at the Johns Hopkins University School of Medicine. Dr. Beier specializes in cognitive rehabilitation and neuropsychological assessment and intervention and she's back to answer more of our questions about managing...

Duration:00:32:56

Episode 155: Managing Caregiver Stress with MaryAnne Sterling

8/17/2020
Being a caregiver can be stressful in the best of circumstances. And life certainly doesn't get any easier or less burdensome for a family caregiver during a global pandemic. Research shows that COVID-19 is adding to the long list of things that caregivers worry about, adding a whole new layer of stress and anxiety to the situations they face every day. My guest this week is MaryAnne Sterling. MaryAnne is an expert on the challenges of family caregiving. And we're talking about ways...

Duration:00:37:21

Episode 154: Vaccinations for People Living with MS with Dr. John Ciotti

8/10/2020
One of the things that people affected by MS seem to worry about every year is the flu vaccine. And the question is always the same -- is it safe for someone with MS to get a flu shot? This year, that question and its accompanying anxiety are compounded by the COVID-19 pandemic. Is it safe for someone with MS to get a flu vaccination during the pandemic? Is it safe for someone with MS to get a COVID-19 vaccination when one becomes available? And what about the impact of MS disease-modifying...

Duration:00:32:30

Episode 153: Improving Your Health Literacy with Dr. Kalina Sanders and Managing MS with Wellness Coach Kate Costello

8/3/2020
MS patients experience better treatment outcomes when they actively participate in their own care. And that requires high health literacy. One of my guests is health literacy expert Dr. Kalina Sanders and we're talking about how being an informed patient can have a significant impact on the healthcare you receive. A well-rounded MS treatment plan will include wellness practices like making smart food choices and adding exercise to your routine. But making changes to our health behaviors...

Duration:00:35:55

Episode 152: Managing MS-Related Cognitive Issues and Depression with Dr. Meghan Beier

7/27/2020
Cognitive decline and depression are two of the more common invisible symptoms of multiple sclerosis, impacting at least half of all the people living with MS. My guest is Dr. Meghan Beier, an Assistant Professor of Physical Medicine at the Johns Hopkins University School of Medicine, and a Rehabilitation Neuropsychologist. Dr. Beier specializes in cognitive rehabilitation and neuropsychological assessment and intervention, and she's going to share some specific strategies that you can...

Duration:00:34:16

Episode 151: Managing MS Pain and Fatigue with Dr. Heidi Maloni

7/20/2020
Pain and fatigue are two of the most common and challenging symptoms of MS. These are the symptoms that can stop you from fully engaging in your life at work, at home, with friends, or family. My guest is Dr. Heidi Maloni. Dr. Maloni is a nurse practitioner and the National Clinical Nursing Director for the Multiple Sclerosis Center of Excellence East at the Veterans Affairs Medical Center in Washington, DC. And Dr. Maloni is an expert on treating pain and fatigue in MS. Dr....

Duration:00:45:12

Episode 150: The Cost of MS Medications, Drug Development, and More: My Conversation with Genentech CEO Alexander Hardy

7/13/2020
Conversations about MS almost always get around to the high cost of MS disease-modifying therapies. Joining me on the podcast is the CEO of Genentech, Alexander Hardy. Genentech is a biotech company that many of you know as the manufacturer of Ocrevus, the first approved disease-modifying therapy that treats both relapsing-remitting MS and primary progressive MS. During our wide-ranging conversation, Alexander and I get into the cost of MS prescription medications, the real costs of...

Duration:00:32:50

Episode 149: A Biomarker to Predict MS Progression with Dr. Robert Fox and Caroline Sincock

7/6/2020
The International Progressive MS Alliance is about to publish a paper that recommends advancing research on a specific biomarker to predict MS progression, and we're getting a pre-publication preview of what that paper is all about. My guests are Dr. Robert Fox, a neurologist and Vice-Chair for Research at the Cleveland Clinic Neurological Institute, and Caroline Sincock, who lives with progressive MS. Both Doctor Fox and Caroline are members of the International Progressive MS Alliance...

Duration:00:45:19

Episode 148: New Guidance for MS Disease-Modifying Therapies with Dr. Aaron Miller

6/29/2020
The guidance for using MS disease-modifying therapies during the COVID-19 pandemic has been updated. My guest is Dr. Aaron Miller, the Chair of the National MS Society’s National Medical Advisory Committee, the Medical Director of the Corinne Goldsmith Dickinson Center for Multiple Sclerosis, and a Professor of Neurology at the Icahn School of Medicine at Mount Sinai, and we're talking about the new guidance for each and every MS disease-modifying therapy that's currently...

Duration:00:26:45

Episode 147: Racial Disparities in MS Care with Dr. Jackie Bhattarai

6/22/2020
Over the past several weeks, the United States has been forced to re-visit, re-examine, and reconsider its own history of racial inequality. This difficult but necessary national conversation has been driven by instances of racial injustice that have their origins in much broader systemic or institutional racism. Our conversations on RealTalk MS typically focus on multiple sclerosis research and multiple sclerosis care. So how does the subject of racial inequality find its way onto today's...

Duration:00:29:52

Episode 146: An Integrative Medicine Approach to Treating MS with Dr. Allen Bowling

6/15/2020
Integrative medicine combines evidence-based alternative medicine with conventional medicine. My guest is Dr. Allen Bowling, an internationally renowned neurologist who specializes in integrative medicine for MS. When it comes to care and treatment for MS, Dr. Bowling has published over 100 articles in clinical and basic science journals. He's been involved in research related to nutrition, dietary supplements, and other non-pharmacologic therapies for the past 30 years. And our...

Duration:00:46:27

Episode 145: Managing MS Through Different Stages of Life with Dr. Jennifer Graves

6/8/2020
MS changes as we age and it follows that managing MS should change, too. We're talking about managing MS through different stages of life with Dr. Jennifer Graves, an associate professor of neuroscience at UC San Diego Health, Director of the UC San Diego Neuroimmunology Research Program, and the Director of the Rady Children’s Hospital Pediatric MS Clinic. There's also lots of news to share about MS disease-modifying therapies including the availability of a newly-approved DMT, an...

Duration:00:28:46

Special Episode: CMSC 2020 Virtual Meeting Recap with Cherie Binns

6/5/2020
Don't miss our recap of the Consortium of Multiple Sclerosis Centers Annual Meeting with Internationally Certified MS Nurse, Cherie Binns. We're talking about aging with MS, managing mood and depression, the latest information on diet and exercise, and more. We have a lot to talk about! Are you ready for RealTalk MS??!

Duration:00:34:53

Episode 144: Emotional Wellness and MS: A Check-In with Dr. Amy Sullivan

6/1/2020
My guest this week is Dr. Amy Sullivan, a Clinical Health Psychologist and the Director of Behavioral Medicine at the Mellen Center for MS Treatment and Research at the Cleveland Clinic. We're talking about fighting feelings of isolation, building resiliency, caregiver emotional wellness, and how we should be thinking about living in a "new normal" world. Massachusetts General Hospital and iConquer MS surveyed more than 1,000 people living with MS about the impact of the COVID-19...

Duration:00:44:39

Episode 143: MS Research Update with Dr. Ellen Mowry

5/25/2020
My guest is Dr. Ellen Mowry, a Professor of Neurology at Johns Hopkins University, where she also serves as the Director of the MS Experimental Therapeutics Program. Dr. Mowry has devoted her entire career to MS research, and her past research has led to breakthroughs in our understanding of MS. Today, Dr. Mowry is the co-principal investigator of an important research study whose outcome could have an impact on the treatment strategy for everyone diagnosed with MS. We're also talking...

Duration:00:35:02

Episode 142: An MS Research Update with Dr. Bruce Bebo

5/18/2020
MS research has reached an important moment. My guest, Dr. Bruce Bebo, calls it "an inflection point." Dr. Bebo is the Executive Vice-President of Research for the National MS Society, and we're talking with Bruce about the MS research projects that have him most excited, why now is the time to write the final chapter in solving the riddle of MS, and how we might even go about preventing people from developing MS. We'll also give you all the details about the MS Society's newly published...

Duration:00:32:14