Seizing Life

This week on Seizing Life® Barbara D’Amora tells us about her son Nicholas, who lived with autism and epilepsy and became an active and inspirational advocate for the autistic community despite being nonverbal. The post An Extraordinary Life of Autism, Epilepsy, and Advocacy appeared first on CURE Epilepsy.

This week on Seizing Life®, recent college graduate and CURE Epilepsy summer intern Kiley Flowers joins us to talk about Jeavons syndrome and share her personal journey with this rare form of generalized epilepsy. The post A Young Woman’s Journey with Jeavons Syndrome appeared first on CURE Epilepsy.

This week on Seizing Life® Clare Phelps shares the difficult diagnosis and frustrating treatment journey of her young daughter Sophie, whose epilepsy has so far been treatment resistant. The post Pursuing Effective Epilepsy Treatment and Running for Research appeared first on CURE Epilepsy.

This week on Seizing Life® Mariah Mayhugh recounts her epilepsy journey, from hiding her diagnosis to becoming a passionate advocate for epilepsy awareness. The post From Hiding Diagnosis to Advocating for Awareness: A Young Woman’s Epilepsy Journey appeared first on CURE Epilepsy.

This week on Seizing Life®, we speak with Hailey Yoon about the emotional and psychological impacts that childhood epilepsy may have even years after seizures subside. The post A Teen Uncovers the Emotional Impacts of Childhood Seizures appeared first on CURE Epilepsy.

This week on Seizing Life® Dr. Dave Clarke gives us a thorough overview of the specialists and services available at comprehensive epilepsy centers and offers advice about when and how to access these care options. The post Comprehensive Epilepsy Centers: An Insider’s Guide appeared first on CURE Epilepsy.

This week on Seizing Life® we speak with epilepsy advocates and married couple Tiffany and Chris Kairos about the impact that epilepsy has had on their marriage and professional lives. The post Love, Marriage, and Epilepsy appeared first on CURE Epilepsy.

This week on Seizing Life®, father and therapist Bud Hager discusses the daily responsibilities and the overarching emotional journey of parenting a child with a rare disease. The post The Caregiver Journey: A Father’s Story appeared first on CURE Epilepsy.

This week on Seizing Life® Dr. Patrice Jackson-Ayotunde discusses her 20+ years of epilepsy drug research and her decade-long epilepsy fundraising efforts. The post Epilepsy Researcher Compounds Lab Work with Fundraising appeared first on CURE Epilepsy.

This week on Seizing Life® Matt Perrone shares his epilepsy journey, discusses the impacts of epilepsy on his mental health, and explains how his daughter’s diagnosis spurred him to create EpiPalooza. The post A Daughter’s Diagnosis Inspires Concerts for Epilepsy appeared first on CURE Epilepsy.

This week on Seizing Life® Reid Rainwater and his father Ryan share Reid’s epilepsy treatment journey and the impacts of epilepsy and stigma on his education and tennis career as one of the top young players in Oklahoma. The post Teen Tennis Player Remains on Court Despite Seizures and Stigma appeared first on CURE Epilepsy.

This week on Seizing Life® Colleen Jendreas shares her son Owen’s epilepsy journey and discusses the two interventions that have significantly improved his quality of life. The post From LGS to Surgery to Just Being a Kid: A Mother Shares Her Son’s Epilepsy Journey appeared first on CURE Epilepsy.

This week on Seizing Life® Advanced Practice Provider Lucretia Long shares her 30 years of experience in the epilepsy field and discusses the crucial role nurses and other non-physician providers play in epilepsy care. The post The Crucial Role of Nurses in Epilepsy Care appeared first on CURE Epilepsy.

This week on Seizing Life Susan Axelrod, CURE Epilepsy founder, and Barbara Kelly, the founding Research Chair, discuss the past, present, and future of the organization and epilepsy research. The post From Desperation to Hope: The Founding and Future of CURE Epilepsy appeared first on CURE Epilepsy.

This week on Seizing Life® Carmen Zannier shares her 35 year epilepsy journey, discusses her recent decision to go public with her diagnosis, and explains how her passion for mountain climbing has led her to raising funds for epilepsy research. The post Sharing Epilepsy Diagnosis After Decades Leads to Climbing for Research appeared first on CURE Epilepsy.

This week on Seizing Life®, the Tsane family share daughter Christiane’s epilepsy diagnosis and treatment journey, and explain how they manage her seizures while nurturing her love of competitive running. The post Epilepsy Can’t Stop Young Girl’s Competitive Spirit appeared first on CURE Epilepsy.

This week on Seizing Life® Ara Carbonneau shares her decades-long epilepsy journey from initial febrile seizures caused by meningitis at seven months old to her epilepsy diagnosis at the age of 36. The post After Decades of Seizures, an Epilepsy Diagnosis Begins to Provide Answers appeared first on CURE Epilepsy.

This week on Seizing Life® we look at diagnostic and surgical tools that assist physicians in localizing and removing areas of the brain that produce seizures. The post Recent Advances in Diagnostic and Surgical Tools for Epilepsy appeared first on CURE Epilepsy.

Epilepsy advocate Kate Neale Cooper and host Kelly Cervantes share their experiences parenting children with epilepsy and offer advice on advocating for your child’s epilepsy care. The post Unleashing Your Inner Mama Bear appeared first on CURE Epilepsy.

This week on Seizing Life® kids ask pediatric neurologists about epilepsy. Dr. Kristen Park of Children’s Hospital of Colorado and Dr. Adam Numis of the UCSF Benioff Children’s Hospital answer questions from kids on a wide variety of topics related The post Kids Ask Docs the Darndest Things About Epilepsy appeared first on CURE Epilepsy.