Sharp Waves: ILAE's epilepsy podcast-logo

Sharp Waves: ILAE's epilepsy podcast

Health & Wellness Podcasts

Epilepsy affects more than 50 million people. Every day. Sharp Waves brings you stories about people with epilepsy, physicians treating epilepsy, and researchers studying the condition. We'll cover the latest research, challenges to diagnosis and treatment, and issues from around the world.

Location:

United States

Description:

Epilepsy affects more than 50 million people. Every day. Sharp Waves brings you stories about people with epilepsy, physicians treating epilepsy, and researchers studying the condition. We'll cover the latest research, challenges to diagnosis and treatment, and issues from around the world.

Language:

English

Contact:

8027645966


Episodes
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Consensus recommendations for epilepsy with eyelid myoclonia (Jeavons syndrome): Dr. Kelsey Smith

6/10/2024
A recent publication outlined areas of consensus on the recommended management, treatment options, and prognosis for epilepsy with eyelid myoclonia, also known as Jeavons syndrome. Dr. Alina Ivaniuk interviewed Dr. Kelsey Smith about the results and how consensus was reached. They discuss which medications are recommended as first-line treatment, possible non-pharmacologic treatment options, and what is known about the safety of driving in this population. The publication appears in Epilepsia: Smith KM, et al. Management of epilepsy with eyelid myoclonia: Results of an international expert consensus panel. Epilepsia. 2023; 64: 2342–2350. https://doi.org/10.1111/epi.17682 Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:23:03

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Developmental and epileptic encephalopathies: Managing more than seizures - Dr. Scott Demarest

5/27/2024
Besides seizures, people with developmental and epileptic encephalopathies experience a wide variety of symptoms, including sleep problems, vision problems, and behavioral issues. Dr. Scott Demarest discusses how neurologists may be able to address some of these, improving outcomes and quality of life. Selected recent Sharp Waves episodes also are available on YouTube. Most of the video podcast episodes have additional educational content, such as graphs, photos, and slides. The ILAE YouTube channel houses more than 300 videos, including previously recorded webinars, teaching courses, Congress interviews, and much more. Visit the channel today and be sure to subscribe to stay up to date on all of our video resources. Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:29:57

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Seizure action plans as educational tools: Dr. Lucretia Long

5/13/2024
Seizure action plans can help people with epilepsy manage their seizures and address emergencies. They often are aimed at a subset of people with epilepsy, particularly children. Dr. Lucretia Long discusses how seizure action plans can be used to engage and educate all people with epilepsy, as well as their families and the larger community. Seizure action plan examples: English, Spanish, Simplified Chinese, Korean, Tagalog, Ukrainian, Vietnamese Online fillable seizure action plan - English (PDF) Plan de acción de incautación en línea - espanol (PDF) List of published research on seizure action plans Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:21:01

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The Human Intracerebral EEG Platform and the power of big data: Dr. Philippe Ryvlin

4/29/2024
What is the Human Brain Project and how might it advance epilepsy research? Dr. Maryam Nouri speaks with Dr. Philippe Ryvlin about the project in terms of the Human Intracerebral EEG Platform and how compiling these unique data from around the world could lead to new breakthroughs and understanding of epilepsy. The Human Intracerebral EEG Platform is an open-source platform designed for collecting, managing, analyzing, and sharing iEEG data at an international level. Its primary mission is to promote the development of large-scale iEEG research projects by facilitating international collaborations in the field. Links: Human Brain Project Human Intracerebral EEG Platform The Virtual Brain Selected recent Sharp Waves episodes also are available on YouTube. Most of the video podcast episodes have additional educational content, such as graphs, photos, and slides. The ILAE YouTube channel houses more than 300 videos, including previously recorded webinars, teaching courses, Congress interviews, and much more. Visit the channel today and be sure to subscribe to stay up to date on all of our video resources. Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:27:16

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Reproductive health counseling in adolescents with epilepsy: Dr. Elizabeth Harrison and Dr. Laura Kirkpatrick

4/15/2024
Counseling of teens and young adults with epilepsy about reproductive issues is not happening often enough. Conversations about pregnancy are almost non existent. Sharp Waves spoke with authors of a recent paper that details these findings and discusses possible solutions. Read the study: A retrospective textual analysis of sexual and reproductive health counseling for adolescent and young adult people with epilepsy of gestational capacity - Epilepsy & Behavior (epilepsybehavior.com) Related articles by the same authors: Sexual and reproductive healthcare for adolescent and young adult women with epilepsy: A qualitative study of pediatric neurologists and epileptologists - Epilepsy & Behavior (epilepsybehavior.com) (2020) A survey of child neurologists about reproductive healthcare for adolescent women with epilepsy - Epilepsy & Behavior (epilepsybehavior.com) (2021) Sexual and reproductive health concerns of women with epilepsy beginning in adolescence and young adulthood - Epilepsy & Behavior (epilepsybehavior.com) (2021) A Survey of Healthcare Providers About Reproductive Healthcare for Adolescent Women With Epilepsy - Journal of Pediatric and Adolescent Gynecology (jpagonline.org) (2022) Pediatric Neurologists’ Perspectives on Sexual and Reproductive Health Care for Adolescent and Young Adult Women With Epilepsy and Intellectual Disability (2022) Preferences and experiences of women with epilepsy regarding sexual and reproductive healthcare provision - Epilepsy & Behavior (epilepsybehavior.com) (2022) Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:21:26

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Changing epilepsy care through entrepreneurship: Dr. Mark Cook

4/1/2024
People with epilepsy don't always know when they have had a seizure - and yet establishing seizure frequency is a key part of epilepsy management. When Dr. Mark Cook's father was diagnosed with epilepsy, Dr. Cook realized that a system to identify and predict seizures could improve care and change people's lives. Dr. Parthvi Ravat talks with him about entrepreneurship in epilepsy and ways to advance the field through innovation. Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:23:25

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Maximizing health-related quality of life after pediatric epilepsy surgery: Dr. Mary Lou Smith

3/18/2024
Is surgery for pediatric epilepsy "worth it"? What factors determine quality of life in families with a child who has epilepsy? Dr. Kette Valente talks with Dr. Mary Lou Smith, whose work has implications for clinical treatment decisions, as well as expectations for the impact of treatments in children with epilepsy. Selected recent Sharp Waves episodes also are available on YouTube. Most of the video podcast episodes have additional educational content, such as graphs, photos, and slides. The ILAE YouTube channel houses more than 300 videos, including previously recorded webinars, teaching courses, Congress interviews, and much more. Visit the channel today and be sure to subscribe to stay up to date on all of our video resources. Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:25:20

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Clinical neurophysiology training: The present and the future - Dr. Sandor Beniczky

3/4/2024
EEG training varies within countries as well as between them; in many countries, there is no training available. Dr. Bruna Nucera talks with Dr. Sandor Beniczky about the present and future of clinical neurophysiology training, including a recent review that calls for harmonizing this type of training across the globe. Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:15:07

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Neonatal seizures: Guidelines and consensus-based recommendations: Dr. Ronit Pressler

2/19/2024
Seizures are common in neonates, but there is substantial management variability. The Neonatal Task Force of the International League Against Epilepsy (ILAE) developed evidence-based recommendations about anti-seizure medication management in neonates in accordance with ILAE standards. Dr. Emma Carter speaks with first author Dr. Ronit Pressler about the guidelines and recommendations, and how they were established. Treatment of seizures in the neonate: Guidelines and consensus-based recommendations—Special report from the ILAE Task Force on Neonatal Seizures Selected recent Sharp Waves episodes also are available on YouTube. Most of the video podcast episodes have additional educational content, such as graphs, photos, and slides. The ILAE YouTube channel houses more than 300 videos, including previously recorded webinars, teaching courses, Congress interviews, and much more. Visit the channel today and be sure to subscribe to stay up to date on all of our video resources. Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:25:28

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Bringing epilepsy out of the shadows: How far have we come? Dr. Edward (Ted) Reynolds

2/5/2024
In the 1990s, there was more funding for leprosy research in the United Kingdom than for epilepsy research. It was around that time that Dr. Edward (Ted) Reynolds, then president of ILAE, recognized that as a global problem, epilepsy required global solutions. His idea blossomed into the Global Campaign Against Epilepsy and established a partnership among ILAE, the World Health Organization, and the International Bureau for Epilepsy that continues to this day through the Intersectoral Global Action Plan for Epilepsy and Other Neurological Disorders (IGAP). Dr. Reynolds is interviewed by Dr. Edward Bertram, ILAE Secretary General. Selected recent Sharp Waves episodes also are available on YouTube. Most of the video podcast episodes have additional educational content, such as graphs, photos, and slides. The ILAE YouTube channel houses more than 300 videos, including previously recorded webinars, teaching courses, Congress interviews, and much more. Visit the channel today and be sure to subscribe to stay up to date on all of our video resources. Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:25:46

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"Talking about things that no one else will talk about": Torie Robinson, host of Epilepsy Sparks Insights

1/22/2024
For her podcast, Epilepsy Sparks Insights, Torie Robinson interviews epilepsy clinicians and scientists from around the world. Diagnosed with epilepsy at age 10, Torie is working to share knowledge with people with epilepsy, their families, and the public. Her episode topics range widely, from the biochemistry of epilepsy, to the importance of epilepsy nurses, to epilepsy as an autoimmune condition, to sexual issues. Listen to Epilepsy Sparks Insights wherever you get your podcasts, including YouTube. Finding Torie: Podcast Website YouTube Facebook Instagram: @TorieRobinson10 X (formerly Twitter): @TorieRobinson10 Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:23:14

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Neurology researcher and parent advocate: Dr. Luis Oliviera and the v-ATPase Alliance

1/8/2024
Dr. Luis Oliviera is parent to a son with an ultra-rare developmental and epileptic encephalopathy. He's also a researcher with the Michael J. Fox Foundation. He created an organization bringing parents and researchers together to better understand his son's disorder, which is part of a group of disorders caused by rare mutations in v-ATPase genes. Dr. Oliviera was interviewed by Dr. Alina Ivaniuk. Visit the v-ATPase Alliance website Contact the v-ATPase Alliance What is v-ATPase? Selected recent Sharp Waves episodes also are available on YouTube. Most of the video podcast episodes have additional educational content, such as graphs, photos, and slides. The ILAE YouTube channel houses more than 300 videos, including previously recorded webinars, teaching courses, Congress interviews, and much more. Visit the channel today and be sure to subscribe to stay up to date on all of our video resources. Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:26:44

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The Idea of Epilepsy: Dr. Phillip Pearl and Dr. Simon Shorvon

12/3/2023
The Idea of Epilepsy, published in 2023, covers the history of epilepsy from multiple perspectives over the past 160 years. It ends with a tantalizing question: Does epilepsy actually exist? Dr. Phillip Pearl interviews author Dr. Simon Shorvon about why and how he wrote the book and what it has to offer clinicians, researchers, and non-scientists alike. More about The Idea of Epilepsy (from the publisher) Selected recent Sharp Waves episodes also are available on YouTube. Most of the video podcast episodes have additional educational content, such as graphs, photos, and slides. The ILAE YouTube channel houses more than 300 videos, including previously recorded webinars, teaching courses, Congress interviews, and much more. Visit the channel today and be sure to subscribe to stay up to date on all of our video resources. Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:35:37

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First seizure from sleep - What is the risk of recurrence? Dr. Elaine Pang

11/20/2023
Are people who have their first seizure during sleep at greater or lesser risk for future seizures, compared with people who have their first seizure when they're awake? Dr. Laurent Sheybani interviews Dr. Elaine Pang, author of a 2023 paper in Epilepsia that analyzed data from 1,312 adults visiting a first-seizure clinic. This episode also discusses a 2015 evidence-based guideline on managing a first unprovoked seizure in adults. The guideline was developed by the American Academy of Neurology and the American Epilepsy Society. Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:17:21

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Cannabinoids, endocannabinoids, and epilepsy: Dr. Raphael Mechoulam

11/6/2023
Dr. Raphael Mechoulam was an organic chemist at the Hebrew University of Jerusalem, and the father of cannabis research. His team was the first to elucidate the structure of cannabidiol, or CBD. Dr. Mechoulam passed away in March 2023. This episode is a remastering of a conversation between Dr. Mechoulam and Dr. Meir Bialer, held in 2018 at the 13th European Congress on Epileptology. They spoke about CBD, THC, the endocannabinoid system, and the effects of cannabinoids in epilepsy and other conditions. Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:15:30

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Autism and epilepsy: Dr. Colin Reilly and Dr. Stéphane Auvin

10/23/2023
Nearly one-third of people with autism also have epilepsy. Researchers aren't sure why. For people on the spectrum, epilepsy can prompt unique challenges. Seizure symptoms can be misinterpreted as common autistic behaviors. Treatment may also be difficult due to the stress of a clinical setting, or the impact of anti-seizure medications on autism symptoms. Currently, some experts argue that there is a lack of research in assessing these care pathways. To learn more about diagnosis and treatment for people with autism and epilepsy, Joy Mazur spoke to Dr. Colin Reilly and Dr. Stéphane Auvin. Related studies/links: Epilepsy in patients with autism: links, risks and treatment challenges Besag FMC, et al., 2017 Neurobehavioral Comorbidities in Children with Active Epilepsy: A Population-Based Study Reilly C, et al., 2014 Traditional and non-traditional treatments for autism spectrum disorder with seizures: an on-line survey Frye RE, et al., 2011 Epilepsy and autism - National Autistic Society Selected recent Sharp Waves episodes also are available on YouTube. Most of the video podcast episodes have additional educational content, such as graphs, photos, and slides. The ILAE YouTube channel houses more than 300 videos, including previously recorded webinars, teaching courses, Congress interviews, and much more. Visit the channel today and be sure to subscribe to stay up to date on all of our video resources. Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:29:24

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Dravet syndrome and the influence of the genome: Dr. Sanjay Sisodiya

10/9/2023
Dravet syndrome is a rare, severe epilepsy caused by changes in a gene called SCN1A. The changes cause the gene to stop functioning normally. But not everyone with this type of genetic change develops Dravet syndrome, and people with Dravet also have a wide range of clinical characteristics, which can't be fully explained by these changes. What else is going on? We spoke with Dr. Sanjay Sisodiya about a recent publication on genomic influences in Dravet syndrome. This episode is based on a recent publication in the journal Brain: Widespread genomic influences on phenotype in Dravet syndrome, a ‘monogenic’ condition Dravet syndrome is a rare severe epilepsy typically caused by loss-of-function SCN1A variants. Despite a recognizable core phenotype, Dravet syndrome also has phenotypic heterogeneity, which cannot be explained by clinical factors or SCN1A variants. This relatively small study (34 adults) found that additional genomic variation contributes to the diversity of phenotypes found in Dravet syndromes. The authors suggest that the SCN1A variant may need to act against a "broadly compromised genomic background" to generate the full Dravet syndrome phenotype, and that genomic resilience may contribute to a reduction in mortality risk among adults with Dravet syndrome. Selected recent Sharp Waves episodes also are available on YouTube. Most of the video podcast episodes have additional educational content, such as graphs, photos, and slides. The ILAE YouTube channel houses more than 300 videos, including previously recorded webinars, teaching courses, Congress interviews, and much more. Visit the channel today and be sure to subscribe to stay up to date on all of our video resources. Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:26:21

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Attorney turned author pens an epilepsy-focused novel: Sara Staggs

9/25/2023
Sara Staggs was a civil rights attorney and pregnant with her second child when her doctors told her to stop practicing law: her seizures had become too frequent. Staggs' 2023 novel, Uncontrollable, fictionalizes her experiences with epilepsy and provides insight into how epilepsy affects families, careers, and relationships. Staggs talked with Dr. Alina Ivaniuk about her epilepsy history, her surgical evaluation experiences, and how she pivoted from attorney to author. Selected recent Sharp Waves episodes also are available on YouTube. Most of the video podcast episodes have additional educational content, such as graphs, photos, and slides. The ILAE YouTube channel houses more than 300 videos, including previously recorded webinars, teaching courses, Congress interviews, and much more. Visit the channel today and be sure to subscribe to stay up to date on all of our video resources. Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:30:20

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Cerebral amyloid angiopathy, seizures, and epilepsy: Dr. Brin Freund

9/11/2023
We'll frame today's talk around a paper recently published in the European Journal of Neurology: "The incidence and risk factors associated with seizures in cerebral amyloid angiopathy." With us today is the first author of the article, Dr. Brin Freund. Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:21:23

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Research recap: Modified Atkins diet and health-related quality of life - Dr. Magnhild Kverneland

8/28/2023
Diet treatments are often used with the aim of reducing seizure frequency and severity — but they may have other benefits as well. Findings from a recent study conducted in Norway suggest that dietary treatments may normalize emotional symptoms and that health-related quality of life (HRQOL) might be an indicator of successful diet treatment in the future. Joy Mazur spoke with Dr. Magnhild Kverneland about the study's results and its implications. Health-related quality of life in adults with drug-resistant focal epilepsy treated with modified Atkins diet in a randomized clinical trial was published in Epilepsia in March 2023. Related studies: Anxiety and depressive disorders in people with epilepsy: A meta-analysis Scott A, et al., 2017 Modified ketogenic diets in adults with refractory epilepsy: Efficacious improvements in seizure frequency, seizure severity, and quality of life Roehl K, et al., 2019 Support the Show. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, X (Twitter), Instagram, and LinkedIn.

Duration:00:19:02