Tourette's Podcast

SEASON 2 FINALE PART B! We end with one of the most deep and interesting conversations yet. Entrepreneur Niko is the founder of PRML Soul Clothing in Las Vegas and has quite a life story driving him, from his family's international search for TS relief to self-acceptance that tours through the deepest elements of human nature. His experiences roll into personal empowerment and life coaching for others, and it makes for a talk that ends on sharply engaging notes. Season 2 fin! DISCLAIMER:...

In the first of a two-part season finale, we've got two special guests -- Tourette Association of America President and CEO Amanda Talty, followed by Matt Capriotti, a scientist whose research is furthering our understanding of TS and its impacts. Talty answers listener questions and talks about changes going at the Tourette Association to better support the TS community of all ages. Capriotti lays out findings from a recent study of life outcomes for people diagnosed with TS. This is...

A portrait photographer whose work lights up disorders including Tourette Syndrome; a fiction author who's written a Tourettic protagonist; and listener feedback on Justin's question. Photographer AJ Ouellette, "Invisible Illness Project" - https://annajeanouellette.wixsite.com/ajphotography/invisible-illness-project Janet McLaughlin, "Different" https://absolutelovepublishing.com/different/

An astronomically great guest, a challenging listener question, and endless coffee. Here we are with Episode 13 of Season 2 -- hard to believe we're this far already. Podcastage https://www.youtube.com/channel/UCvOU-zTlankT-JjN3ZzvuKA Bandrew Says #145 https://directory.libsyn.com/episode/index/show/bandrewsays/id/7609697

Per holiday travel obligations here, we kinda didn't expect an episode this week. Surprise. Here we have a GREAT conversation with Adrienne, a Touretter who lives in Manchester, England, where she's pursuing a PhD. We hear about her research, her life with TS, a Tourette connection in the family, and, among many other things, getting tattooed amid the urge the tic. Tourette's Podcast Discussion Group https://www.facebook.com/groups/664680327265761/

How is music or creativity so often our commonality? On this episode we hang out with Simon AKA Jimmy Humbucker, who traffics music in his personal life and, in his work life, positive words for Tourette Canada, where he has a communications role. Here we discuss his tics, involvement with the TS community, TV appearance, and his self-recorded rock. BUT FIRST we spend some time on listener feedback, responses to Hilary from the previous episode, and a potential revelation on the ever popular...

Into the classroom we go, as a teacher with Tourette Syndrome. This week's guest Tristyn teaches high school world history and sends A LOT of kids into the world each year with a better understanding of TS. We reach into her background, diagnosis, how she explains it to her colleagues and students, and how they regard her. First, though, we give you the best listener-submitted analogies for the urge to tic, and then we field a question you can help answer.

We're back, and with a lot of goodwill in our guest this week, Alexi from Ottawa, who works in the craft beer industry. His handling of his own TS is pretty commendable -- though public shame certainly isn't a concern of his. Feeling like there's a lot to learn from this one. Plus: welcoming lots of new listeners, one of whom brings Ben a question to answer about his youth.

Yo! So, when Windows activated an automatic update on my computer on Tuesday, it was a disaster that started a chain of events that ultimately led me to lose all my audio production software -- which I now have to rebuild. No interview files lost, I had all of them backed up, thankfully. Anyhoo, listen to a brief audio message here and we'll be BACK SOON with all new episodes. Thank you so much for your patience. -Ben

Here's an episode that really stands apart at times, with Marie of the Toronto area tracing a past with Tourette moments that surprise and sometimes startle -- though ultimately we'll all agree Marie is a total delight to hear from and represents a season highlight. Before we get to Marie, we hear listener feedback (and Carson gets an answer). After Marie, at the end of the episode, a little podcast policy update. The research Angie mentioned: https://www.ncbi.nlm.nih.gov/pubmed/16046664

Ben is home after a string of airline flights and keeps in theme by talking with Zach, a flight attendant who has Tourette Syndrome. Zach ALSO has been a counselor at Camp Twitch and Shout, a place where kids with TS can do their thing pressure-free. Zach discusses all this and more. Loads of moments and tic connections. Camp Twitch and Shout: https://camptwitchandshout.org/ And if anyone out there can help Christine or connect her with employment opportunities, here's her...

Dimi from Australia is preparing to climb Mount Kilimanjaro for Tourette Awareness -- so, yeah, we absolutely had to get him on the show. On this episode, Dimi tells us what led up to this and what he hopes to accomplish for the Tourette community, and we of course rap about his tics and TS experience. Teachers were his biggest bullies? An amazing episode not to miss. Dimi's social media pages: https://twitter.com/DimiKarkaliev https://www.instagram.com/dimikarkaliev/

On this episode we've got Yvette from Alaska. She's got an infectious laugh and drops sharp points about Tourette in the workplace and school as we carve through her history with TS and how people mistake her eye tics for communicative winks. Super enjoyable convo. Solid advice for parents ahead, too. Weigh in with the Tourette's Podcast Facebook Group (join!) https://t.co/z1ig46ZQxs

Just before Hurricane Florence made landfall, Ben made sure to speak with a meteorologist. Not for predictions or reassurance; Ed Buckner is a TV weather man with Tourette Syndrome. He's an admitted introvert -- so how in the world did he end up in front of a live camera? Ed Buckner, THV11 - https://www.thv11.com/article/about-us/team-bios/ed-buckner/91-44672704 Ed on Twitter - https://twitter.com/ed_buckner?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5Eauthor "T-Man & Hyperstrike"...

On this episode we've got Jayde, who, same as Ben, didn't live an open life with TS until the fairly recent past. She has an amazing story of how she got up the courage to open up and own it. Plus: Listener mailbag and ... is there a Facebook group now? Show notes Is procedural memory enhanced in Tourette syndrome? Evidence from a sequence learning task https://www.sciencedirect.com/science/article/pii/S0010945217302940?via%3Dihub Tweet from Christine Conelea...

This week, we're in Scotland (via phone line, anyway) with Michael, who just came off a tic attack before this interview. It's gotta be exhausting. But he soldiers through, and delivers on a solid story of life with Tourette Syndrome (and the fight for the right diagnosis).

On this episode, we've got Jaleesa, who deals with complex vocal tics, movements and other comorbidities that get pretty much zeroed out by her astounding approach and command. Let's just say she can set a gawker straight -- kindly. Lot of philosophy here. Take notes. First though, we start with a little Dungeons and Dragons.

The return! An amazing season ahead. Here we update you on what's happened since the end of Season 1, and we dig in to the listener mailbag.

It's the finale of Season 1, and we have a highlight guest in Tim Bissell. His past work in the TV industry and current work writing articles for publication all seem to have some thread with Tourette Syndrome, and how could they not? It's such a shaper. Favorite thing about this talk with Tim: he's the first person Ben spoke with who, like Ben, has "visualizations" along with his tics, which really opened a door -- or a drawer, as you'll hear. So many high points in this episode, and it's a...

After some (important) talk about Tourette Awareness Month and the easy ways you can back it, we talk with Rosetta, a rising Linux star from the Pacific Northwest who, herself, wants to do more with Tourette awareness and community interaction. Her story is pretty compelling on its own. You'll have no problem welcoming and supporting her. Tourette Awareness Month - 5 Ways to Raise Awareness http://www.tourette.org/about-us/5-ways-raise-awareness/