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081 – Be Yourself – LIVE at Amicus Therapeutics

7/15/2019
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The teenage years are some of the toughest years most of us live through. Aside from the typical peer pressures and desires to fit in, imagine facing middle and high school with a rare disease. That’s exactly what these three girls have done or are doing right now. Meet Caterina, Maya & Annie as we talk about life with a rare disease. From pay phones and boy bands, to navigating school schedules and surgeries, these three girls talked with Kyle & Sean in front of the committed and supportive...

Duration:00:51:26

080 – Accountability is the key to getting stuff done (GSD)

6/10/2019
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This podcast would have never happened if we weren't keeping each other accountable. There are many other examples in our lives where accountability is the key to follow through. Join us as we discuss this and the future of Two Disabled Dudes.

Duration:00:33:09

079 – A Mother’s Depression and a Daughter’s Tenacity

6/3/2019
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A tragic car accident left Cindy feeling guilty and depressed. Life for her family, especially her teenage daughter, Beth, was thrown into turmoil in an instant and left everyone asking, "what now?" In this episode we interview Cindy Kolbe, author of Struggling With Serendipity. Cindy tells her very personal story of pain, her struggle with depression and the hope that helped her see the beauty of life, despite tragedy. Hear Cindy's story and learn about her work in this episode! You'll hear...

Duration:00:37:15

078 – Sanford Research in South Dakota

5/27/2019
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Kyle Attended the Professional Patient Advocates in Life Sciences (PPALS) training a few weeks ago. Immediately following, Sean joined for a screening of The Ataxian to kick off the Great Plains Rare Disease Summit. Join us for this conversation about patient involvement!

Duration:00:29:25

077 – Thriving Blind with Kristin Smedley

5/20/2019
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Kristin smedley was a new mother with a dream life when she found out her baby was blind due to a rare disease. Then she was dealt a second "dose of blindness" a couple years later when her second son was blind too. All the hopes and dreams she had for her life were crushed. It took several years but she learned to follow her kids' lead to navigate the world of blindness. And she learned to Set Extraordinary Expectations through her experiences. Kristin's website: kristinsmedley.com...

Duration:00:35:33

076 – Mothers Day Special – Meet Our Moms

5/12/2019
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Elaine Baumstark and Diane Bryant join the dudes to talk about how two pains in the neck turned into two really good looking and extremely intelligent young men. Seriously, we are grateful for Moms who continue to be wise and supportive influences on our lives. Happy Mothers' Day everyone!

Duration:00:49:01

075 – The Relationship Between the Patient and the Scientist

5/6/2019
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Understanding the science behind your disease, condition, or challenge is intimidating and many times the question is "Why should I? What's the point?" However when we do make the effort to understand, we may find out that it becomes an incredibly important and empowering part of our journey. The dudes discuss this topic as it relates to them and they try to be smart as always.

Duration:00:27:35

074 – Jeff Bell Part 2 – Adversity to Advocacy

4/29/2019
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In part one of this two part interview, Jeff talked about the challenges OCD brought to his life. In part two (this episode) Jeff talks about how he has used his adversity to create a platform for advocacy for himself and others through "Greater Good Motivation". Links mentioned in this episode: Jeff's personal website where you can learn more, follow, and reach out to Jeff: jeffbellonline.comJeff's Non-Profit, The Adversity 2 Advocacy Alliance - an all volunteer 501(c)3 nonprofit...

Duration:00:34:49

073 – Jeff Bell Part 1 – What is OCD?

4/22/2019
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I part 1 of this 2 part interview, Jeff joins the dudes to talk about his experience with OCD and how it differs from the common perception of the disorder. In part 2 (Episode 074) Jeff talks about how he turned his challenges into an opportunity to advocate for himself and others. Jeff Bell is an author, health advocate, and radio news anchor. He is actively involved with the International OCD Foundation, for which he serves as a board member and national spokesman. In 2011, he co-founded...

Duration:00:37:03

072 – The Difference Between a Reason and an Excuse

4/15/2019
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The dudes discuss the difference between a reason and an excuse based on one's own personal principles.

Duration:00:30:20

071 – Photos From the Beginning of the Year

4/8/2019
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Sean read Kyle's book recently and he had a few questions and discussion points. Additionally Sean and Kyle explore their top three photos of 2019 so far. Check out the photos and listen to the show! Links to order Kyle's book are at kyleabryant.com

Duration:00:31:15

070 – Leveraging Sport for Rare Disease

4/1/2019
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Rob Long was on his way to the NFL until a massive brain tumor completely altered his life. Rob now serves as the Executive Director of Uplifting Athletes, an organization committed to inspiring the rare disease community through the power of sport. In this episode he shares his personal story and the work of Uplifting Athletes. Sean also talks about his traumatic encounter with a scutigera coleoptrata. (We had to look that up). Click here for video interview referenced in episode.

Duration:00:37:15

069 – Things We Like

3/25/2019
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Kyle's first experience as an Uber driver. And the dudes discuss 3 things each that make their lives better.

Duration:00:38:03

068 – James Miller | Lifeology

3/18/2019
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James Miller is a licensed psychotherapist and the executive producer and host of the nationally broadcasted and syndicated radio show: James Miller Lifeology. James has been in the mental health field for over 22 years. After 13 years in private practice James left his successful practice in the Washington, DC area to follow his own dreams. He created James Miller Lifeology where he globally helps people simplify and transform their spirit, mind, and body. http://jamesmillerlifeology.com...

Duration:00:38:29

067 – He’s An Athlete No Matter The Circumstance – Glenn Hartrick

3/11/2019
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Glenn Hartrick has been an amazing athlete for a long time, setting records as an able bodied triathlete. He was hit by a car during a training ride and was immediately paralyzed. He is now an Ironman para triathlete. His addiction to endurance knows no bounds.

Duration:00:25:39

066 – Death March for Ataxia with Mike De Rosa

3/4/2019
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Kyle starts off with a story about a crash on his trike and then states his intent to become an Uber driver. However this episode is really about Mike De Rosa and his friend Ed Brand as they prepare for the commemorative Bataan Death March to raise awareness and funds for the National Ataxia Foundation. https://youtu.be/cTWcojCpmqM Donate to their effort here: https://bit.ly/2UiCaAz

Duration:00:28:08

064 – Bodybuilding With a Disability – Mr. No Excuses, Hasan Banks

2/18/2019
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Hasan Banks grew up in Harlem and was diagnosed with a rare disease called SCA7 that affects his balance, coordination, eyesight, speech and swallowing among other things. He is known as Mr. No Excuses because of his work ethic in bodybuilding and his amazing outlook on self-love and life. Kyle: "Sean wants a six pack, how does he accomplish that"? Hasan: "Your six pack is in your fridge. You gotta stop eating hamburgers." Instagram: @MrNoExcuses_ Facebook: @HasanBanks

Duration:00:28:19

063 – Grievances With The Dudes

2/11/2019
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We all get annoyed at lots of things in life. Laughing about these things can put our circumstances in perspective.

Duration:00:31:37

062 – Only You Have the Power to Destroy Your Life

2/4/2019
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Gabriel Cordell was paralyzed due to a car accident. He became the first person to push his everyday wheelchair across the entire USA. gabrielcordell.com. Check out the documentary on NETFLIX.

Duration:00:34:49

061 – Just Do It

1/28/2019
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Getting started is the hardest part. Even if you get started down the wrong path you can start over or correct your direction. Either way, you're still farther than if you didn't do anything. Join the Dudes as they explore this topic and read more thoughts from Sean in his blog post: http://seanbaumstark.com/more-than-a-slogan/ And don't forget to preorder Kyle's book. It comes out February 26. Preorder at: Amazon: https://goo.gl/mQD1DiBarnes and Noble: https://goo.gl/2b6iMoBooks a Million:...

Duration:00:28:19