Conversations with Lupus | Unscripted-logo

Conversations with Lupus | Unscripted

Health, Home & Life

Hetlena Johnson is a highly recognized author, speaker, and trainer devoted to helping others face the trials of life with an open mind and energy. A cheerleader for handling life’s challenges with laughter and spirited resilience, she believes in living your best life while living with lupus. Hosted on Acast. See acast.com/privacy for more information.

Location:

United States

Description:

Hetlena Johnson is a highly recognized author, speaker, and trainer devoted to helping others face the trials of life with an open mind and energy. A cheerleader for handling life’s challenges with laughter and spirited resilience, she believes in living your best life while living with lupus. Hosted on Acast. See acast.com/privacy for more information.

Language:

English

Contact:

803 397 5046


Episodes
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CWL06_Interview Liz Morgan PatientsLikeMe

5/1/2017
Named one of Fast Company's 2017 Top 10 Most Innovative Companies in Biotech, PatientsLikeMe is on a mission to put patients first! Learn more about PatientsLikeMe from Liz Morgan, Director, Member Experiences. She answers questions on how the company is committed to helping patients live better. Then log onto PatientsLikeMe.com to join a network of over 500,000 people to share experiences, provide support, and track symptoms.Lupus is a life altering and challenging disease to live with. Lupus is a chronic, autoimmune disease that can damage any part of the body to include, but is not limited to skin, joints and/or life organs. According to the Lupus Foundation of America, Inc.* about 1.5 million people, worldwide, have a form of Lupus.-----Host Note: From the heart of experience, I am well aware of the related difficulties that come with living with Lupus. I was diagnosed with Lupus at the age of 16. At this time, Lupus was still a very curious disease. I was told that I would not live more than ten years after being diagnosed. Yet, life trials and errors prove that I am not dead yet! I am currently in the process of writing a memoir about combating Lupus. More research has enabled many Lupus patients to live fulfilling lives. ========================================­===Learning to live successfully with lupus.========================================­===**Click Below to SUBSCRIBE for More Videos:www.youtube.com/user/LupusLiar========================================­===**Click Below to Sign up for the FREE living with lupus tips via email:goo.gl/li06i0**FOLLOW, LIKE, TWEET, SHARE**Twitter: www.Twitter.com/TheLupusLiarFacebook: www.facebook.com/TheLupusLiarInstagram: www.Instagram/thelupusliarPinterest: www.Pinterest.com/thelupusliarWebsite: www.TheLupusLiar.com Hosted on Acast. See acast.com/privacy for more information.

Duration:00:29:11

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CWL05_A Conversation with Tanisha Davis| Lupus Nephritis Patient and Advocate

2/4/2017
Conversations with Lupus: An Interview with Lupus Patient Tanisha Davis-SmallsHow does a mother of three, diagnosed with lupus nephritis live a full life while living with lupus? Watch this interview with Tanisha as she describes how it feels to be fighting for life and happy at the same time. Lupus is a life altering and challenging disease to live with. Lupus is a chronic, autoimmune disease that can damage any part of the body to include, but is not limited to skin, joints and/or life organs. According to the Lupus Foundation of America, Inc.* about 1.5 million people, worldwide, have a form of Lupus.----Host Note: From the heart of experience, I am well aware of the related difficulties that come with living with Lupus. I was diagnosed with Lupus at the age of 16. At this time, Lupus was still a very curious disease. I was told that I would not live more than ten years after being diagnosed. Yet, life trials and errors prove that I am not dead yet! I am currently in the process of writing a memoir about combating Lupus. More research has enabled many Lupus patients to live fulfilling lives. ========================================­===Learning to live successfully with lupus.========================================­===**Click Below to SUBSCRIBE for More Videos:https://www.youtube.com/user/LupusLiar========================================­===**Click Below to Sign up for the FREE living with lupus tips via email:https://goo.gl/li06i0**FOLLOW, LIKE, TWEET, SHARE**Twitter: http://www.Twitter.com/TheLupusLiarFacebook: https://www.facebook.com/TheLupusLiarInstagram: http://www.Instagram/thelupusliarPinterest: http://www.Pinterest.com/thelupusliarWebsite: http://www.TheLupusLiar.com Hosted on Acast. See acast.com/privacy for more information.

Duration:00:29:33

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CWL04_ Annetta Talks About Her Battle with Lupus

12/15/2016
Annetta's shares a little of her story. Annetta was diagnosed with Systemic Lupus on January 4, 2000. This day changed her life. As the old by Annetta, "I knew it was going to take a toll on me. It was a very cold sense in the room. I can even remember what I was wearing."Annetta's life has changed more than she could ever have imagined. Due to a blood infection and clots in her legs, she has them no more. After her rehabilitation, set to be scheduled soon, she wants to be able to go back to school. But she'll need the help of a vehicle that can be equipped to make her mobile. She only asks for a chance. A chance to live the life she has, the best way she can. https://www.gofundme.com/25fyhwqc========================================­===Learning to live successfully with lupus.========================================­===**Click Below to SUBSCRIBE for More Videos:https://www.youtube.com/user/LupusLiar========================================­===**Click Below to Sign up for the FREE living with lupus tips via email:https://goo.gl/mxiv8m**FOLLOW, LIKE, TWEET, SHARE**Twitter: http://www.Twitter.com/TheLupusLiarFacebook: https://www.facebook.com/TheLupusLiarInstagram: http://www.Instagram/thelupusliarPinterest: http://www.Pinterest.com/thelupusliarWebsite: http://www.TheLupusLiar.com Hosted on Acast. See acast.com/privacy for more information.

Duration:00:29:10

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CWL03_Don't Cheat on Your Doctor with Your Lupus

11/11/2016
Don't cheat on your doctor when it comes to reporting your lupus related health concerns.========================================­===Learning to live successfully with lupus.========================================­===**Click Below to SUBSCRIBE for More Videos:https://www.youtube.com/user/LupusLiar========================================­===**Click Below to Sign up for the FREE living with lupus tips via email:https://goo.gl/li06i0**FOLLOW, LIKE, TWEET, SHARE**Twitter: http://www.Twitter.com/TheLupusLiarFacebook: https://www.facebook.com/TheLupusLiarInstagram: http://www.Instagram/thelupusliarPinterest: http://www.Pinterest.com/thelupusliarWebsite: http://www.TheLupusLiar.com Hosted on Acast. See acast.com/privacy for more information.

Duration:00:02:53

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CWL02_5 Points of Power for After the Lupus Diagnosis

10/6/2016
5 Points of Power (POP) when it comes to being diagnosed with Lupus. Here are five things I wish I would have known when I was first diagnosed with lupus. How do you successfully coordinate care after being diagnosed with Lupus? ========================================­===Learning to live successfully with lupus.========================================­===**Click Below to SUBSCRIBE for More Videos:https://www.youtube.com/user/LupusLiar========================================­===**Click Below to Sign up for the FREE living with lupus tips via email:https://goo.gl/li06i0**FOLLOW, LIKE, TWEET, SHARE**Twitter: http://www.Twitter.com/TheLupusLiarFacebook: https://www.facebook.com/TheLupusLiarInstagram: http://www.Instagram/thelupusliarPinterest: http://www.Pinterest.com/thelupusliarWebsite: http://www.TheLupusLiar.com Hosted on Acast. See acast.com/privacy for more information.

Duration:00:07:26

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CWL01_Am I Dead Yet - The Beginning of A Lupus Liar

9/20/2016
Why live with Lupus? Lupus lives with you. Tell it where, what, and when. You are healthy, you are better, you can do everything. Because Lupus is a liar!Inspired and encouraged by those living with Lupus.Lupus is a life altering and challenging disease to live with. Lupus is a chronic, autoimmune disease that can damage any part of the body to include, but is not limited to skin, joints and/or life organs. According to the Lupus Foundation of America, Inc.* about 1.5 million people, worldwide, have a form of Lupus.----Host Note: From the heart of experience, I am well aware of the related difficulties that come with living with Lupus. I was diagnosed with Lupus at the age of 16. At this time, Lupus was still a very curious disease. I was told that I would not live more than ten years after being diagnosed. Yet, life trials and errors prove that I am not dead yet! I am currently in the process of writing a memoir about combating Lupus. More research has enabled many Lupus patients to live fulfilling lives. ========================================­===Learning to live successfully with lupus.========================================­===**Click Below to SUBSCRIBE for More Videos:https://www.youtube.com/user/LupusLiar========================================­===**Click Below to Sign up for the FREE living with lupus tips via email:https://goo.gl/li06i0**FOLLOW, LIKE, TWEET, SHARE**Twitter: http://www.Twitter.com/TheLupusLiarFacebook: https://www.facebook.com/TheLupusLiarInstagram: http://www.Instagram/thelupusliarPinterest: http://www.Pinterest.com/thelupusliarWebsite: http://www.TheLupusLiar.com Hosted on Acast. See acast.com/privacy for more information.

Duration:00:06:52