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Living Well with Lipedema

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Lipedema, the disease they call fat, is a chronic fat disorder that affects 17 million women in the USA and as many as 350 million women worldwide. It is often mistaken for simple obesity. Generally under-recognized and misdiagnosed, symptoms include pain, swelling and weight gain disproportionately distributed in the thighs, buttocks, legs, and hips with a smaller upper body. Lipedema fat is resistant to diet and exercise and without intervention progresses and worsens over time. This flash briefing offers tips, news, and updates with the founder and director of Lipedema Simplified, Catherine A. Seo, Ph.D., Lipedema Project Board President and Director of Research, Leslyn Keith, OTD, CLT-LANA, and guest experts. Please note DISCLAIMER The information in Living Well with Lipedema is provided for informational and educational purposes only.

Location:

United States

Description:

Lipedema, the disease they call fat, is a chronic fat disorder that affects 17 million women in the USA and as many as 350 million women worldwide. It is often mistaken for simple obesity. Generally under-recognized and misdiagnosed, symptoms include pain, swelling and weight gain disproportionately distributed in the thighs, buttocks, legs, and hips with a smaller upper body. Lipedema fat is resistant to diet and exercise and without intervention progresses and worsens over time. This flash briefing offers tips, news, and updates with the founder and director of Lipedema Simplified, Catherine A. Seo, Ph.D., Lipedema Project Board President and Director of Research, Leslyn Keith, OTD, CLT-LANA, and guest experts. Please note DISCLAIMER The information in Living Well with Lipedema is provided for informational and educational purposes only.

Language:

English


Episodes
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Pioneering the WAL Technique for Lipedema: Insights from Dr. Josef Stutz

5/2/2024
- Today, I bring you a snippet from an interview featuring Dr. Josef Stutz, recorded during our Lipedema Worldwide Summit in 2016. - Renowned as one of Germany's leading lipedema surgeons, Dr. Stutz is credited as a trailblazer in the development of water-jet assisted liposuction (WAL) for treating lipedema. - In this excerpt, Dr. Stutz recounts his initial encounter with the WAL procedure for liposuction, tracing its evolution and adaptation for managing lipedema over the years.

Duration:00:08:07

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Investigating the Therapeutic Potential of Ketogenic Diet for Lymphedema

5/1/2024
- Today, Dr. Sarah Thomis sheds light on an ongoing clinical trial in Belgium examining the impact of a ketogenic diet on lymphedema. - Dr. Thomis completed her surgical training, specializing in general and vascular surgery, at the University of Leuven in Belgium in 2011, with additional training in the Netherlands and the US. - Her expertise lies in the realm of phlebologic and lymphological disorders, and she serves as the attending physician at the Center for Lymphedema at the University Hospitals Leuven.

Duration:00:06:13

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Unveiling the Biochemical Foundations of Lipedema

4/30/2024
- Today, we're delving into what Dr. Robert Cywes affectionately dubs "nerd time." - Dr. Cywes will elucidate his perspective on the biochemical underpinnings of lipedema. - With expertise in Pediatric and Adult obesity, diabetes, and metabolic management, Dr. Cywes is dedicated to unraveling the true origins of obesity and diabetes. - Over his 21-year career in metabolic management, he has guided numerous individuals toward remission from obesity, diabetes, and pre-diabetes. - Dr. Cywes staunchly advocates for a holistic lifestyle shift rather than mere dietary interventions in combating obesity and diabetes.

Duration:00:05:13

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Exploring Resting Metabolic Rate Discrepancies in Women Afflicted by Lipedema

4/29/2024
Discrepancy Analysis: Resting Metabolic Rate in Women Suffering from LipedemaResearch Square

Duration:00:09:02

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Emmy - Inspiring Hope and Resilience in the Lipedema Community

4/28/2024
In our lipedema community, we have a special mascot named Emmy—a winged pig. She embodies the belief that nothing is impossible, a core perspective embraced by our community as we navigate life and healing. Emmy, whose full name is Esperanza Milagros, symbolizes hope and miracles. In today’s flash briefing, We'll share how Emmy became a cherished member of our Lipedema TRIBE Community.

Duration:00:05:19

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Exploring Aquatic Lymphatic Therapy

4/27/2024
In this interview segment from our Lipedema & Keto Worldwide Summit in 2017, Dorit Tidhar, a physiotherapist based in Israel, sheds light on the fundamentals of Aquatic Lymphatic Therapy (ALT) and its positive impact on the lymphatic system.

Duration:00:04:58

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Holistic Pain Relief in Lipedema and Lymphedema - Lessons Shared at a Summer Bootcamp

4/26/2024
During my presentation at Lipedema Simplified’s Awareness Month Summer Bootcamp on June 24, 2022, I delved into the multifaceted origins of pain associated with lymphedema and lipedema. I also explored the efficacy of interventions such as the ketogenic diet, manual lymphatic drainage (MLD), and compression therapy in alleviating pain linked to lipedema.

Duration:00:07:52

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Exploring the Connection Between Lipedema and Lymphedema

4/25/2024
Today, we present a snippet from an interview with Dr. Erez Dayan from the 2016 Lipedema Worldwide Summit. A graduate of the Harvard Plastic Surgery program, Dr. Dayan now serves as the Medical Director of Avance Plastic Surgery Institute in Reno/Tahoe Nevada. In the interview, Dr. Dayan delves into the intricate relationship between lymphedema and lipedema, shedding light on the interplay between adipose tissue and the lymphatic system. Furthermore, he examines potential triggers of lipedema and underscores its distinctions from obesity.

Duration:00:06:51

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Navigating Lipedema: Metabolic Strategies and Lifestyle Changes

4/24/2024
Today, Dr. Robert Cywes delves into the complexities of obesity, lipedema, and insulin resistance, emphasizing a transformative approach he terms the "Lipedema Way of Life." Specializing in Pediatric and Adult obesity, diabetes, and metabolic management, Dr. Cywes focuses on elucidating and addressing the root causes of these conditions. With over two decades of experience in metabolic management, he has guided numerous individuals towards remission from obesity, diabetes, and pre-diabetes. Dr. Cywes advocates for a holistic shift in lifestyle rather than mere dietary interventions, asserting that true solutions lie in comprehensive lifestyle changes.

Duration:00:04:56

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Exploring Contrasts: Lipedema, Lymphedema, and Obesity Unraveled

4/23/2024
In today’s flash briefing, delve into the distinctions among lipedema, lymphedema, and obesity alongside our guest expert, Dr. Stanley G. Rockson. Dr. Rockson holds the esteemed position of the Allen and Tina Neill Professor of Lymphatic Research and Medicine at Stanford University School of Medicine, where he also serves as Chief of Consultative Cardiology and directs the Stanford Center for Lymphatic and Venous Disorders.

Duration:00:05:50

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Exploring Hormonal Influences in Lipedema

4/22/2024
Samantha Connolly, a physical therapist from Spiddal, Ireland, delves into the potential hormonal connections to lipedema, a condition often overlooked in research. In her article, "Does Lipoedema Mimic Pregnancy?", published in Wounds International in 2022, she highlights the need for further investigation in this field. As requested by Catherine Seo from the Lipedema Project, I've reviewed Connolly's work and found it to be quite compelling.

Duration:00:04:00

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The Impact of Organized Systems

4/21/2024
Monday mornings often revolve around calendar checks, mapping out the week ahead, and aligning various tasks. Embarking on modest organizational endeavors can yield significant results. Consider devoting just 10 minutes to enhancing order in one aspect of your life. This small step can pave the way for sustained organization and efficiency.

Duration:00:04:27

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Embracing Self-Connection and Courage

4/20/2024
In this heartwarming episode, we delve into the profound simplicity of a question that holds immeasurable significance: "Do you want to be my friend?"

Duration:00:06:42

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Nutritional Solutions for Lipedema: Insights from Calabria

4/19/2024
Allow me to introduce a recent publication originating from the University of Calabria in Italy authored by Roberto Cannataro and Erika Cione. The study, titled "Utilizing Nutritional Supplements for Managing Lipedema: A Scientific Approach," was released in the Nutraceuticals journal in September 2022. You can access the paper through this link: Life | Free Full-Text | Management of Lipedema with Ketogenic Diet: 22-Month Follow-Up (mdpi.com)

Duration:00:13:13

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How to Get Expert Support from Community

4/18/2024
Join Lisa Duerre and Catherine Seo as they explore the transformative journey of joining the Lipedema Simplified TRIBE Community. In this engaging podcast, Lisa and Catherine share insights into why connecting with this supportive community is an act of self-love and how embracing the tribe can empower your personal journey. Discover the benefits of being part of a community rooted in support, generosity, and shared experiences. Explore the various options for participation and learn how the tribe provides expert guidance rooted in science to navigate the challenges of Lipedema. Whether you're seeking support, expertise, or simply a sense of belonging, this podcast invites you to join the tribe and embark on a journey toward self-discovery and empowerment.

Duration:00:03:45

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Wearable Compression Pump for Lipedema

4/17/2024
Today I’d like to tell you about a paper, which is a collaboration between a lipedema clinic in St Louis, MO, a vascular surgeon in New York, NY, and a non-pneumatic device manufacturer. The paper is titled, Real Time Visualization of Enhanced Lymphatic Flow When Using a Non-Pneumatic Active Compression Device (NPCD) and was published in the peer-reviewed journal Annals of Case Reports in December 2023. The study objective was real-time near-infrared visualization to observe lymph movement at baseline and again after 3 months of use with the NPCD device at home with ambulation.

Duration:00:06:33

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Exploring the Intersection of Lipedema and Venous Disease

4/14/2024
Today, I'll be discussing a paper authored by two physicians based in France. Titled Frequency of lipoedema in patients consulting a vein clinic for mild to moderate superficial venous disorder with symptoms: A retrospective analysis, this paper was published in the peer-reviewed journal Journal of Vascular Medicine in April 2023. The study sets out to investigate the prevalence of lipedema among female patients seeking treatment at a vein clinic for chronic leg pain. The authors highlight the underrecognition and misdiagnosis of lipedema, emphasizing the importance of understanding the frequency of lipedema cases among patients visiting vein clinics. For further information, you can download the blood pressure pamphlet HERE.

Duration:00:09:33

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Unveiling the Dynamics of New Year's Resolutions: Insights from a Swedish Research Study

4/13/2024
Today, I'll be sharing findings from a paper authored by a team of researchers based in Sweden. Entitled A Large-Scale Experiment on New Year’s Resolutions: Approach-Oriented Goals are More Successful than Avoidance-Oriented Goals, this paper was published in the reputable peer-reviewed journal PLOS ONE in December 2020. The researchers aimed to explore the nature of New Year's resolutions, individuals' confidence levels in adhering to their goals, and their overall success rates. They investigated whether framing resolutions as "approach-oriented" or "avoidance-oriented" impacted their achievement rates. Additionally, they examined whether receiving support in the form of information and exercises for goal-setting influenced resolution success. For more information, visit our blog at https://lipedema-simplified.org/blog/.

Duration:00:18:45

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Documenting Enhanced Outcomes: A Case Series on Lipedema Reduction Surgery and its Impact

4/12/2024
Today, I want to share insights from a paper authored by a team of surgeons and clinicians based in the United States. Titled Lipedema Reduction Surgery Improves Pain, Mobility, Physical Function, and Quality of Life: Case Series Report, this paper was published in the peer-reviewed journal PRS Global Open in November 2023. The primary objective of this article is to outline the advantages observed among women in the USA following lipedema reduction surgery, employing methodologies aimed at safeguarding lymphatic structures.

Duration:00:15:10

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Exploring the Viability of Ketogenic Diet as a Therapeutic Approach for Lipedema

4/11/2024
Current Obesity Reports

Duration:00:12:36