Remarkable: Life with Rett Syndrome
Podcasts
A podcast about the families all over the world who love someone with Rett Syndrome. "One day you will tell your story of how you've overcome what you're going through now, and it will become part of someone else's survival guide" Rett Syndrome is a rare genetic disorder with no current cure. As a parent of a daughter with Rett Syndrome, I wanted to talk to other parents to hear their stories and also give the newly diagnosed a positive and encouraging place to find comfort. Check back towards October ,which is Rett Syndrome Awareness Month each year.
Location:
Australia
Genres:
Podcasts
Description:
A podcast about the families all over the world who love someone with Rett Syndrome. "One day you will tell your story of how you've overcome what you're going through now, and it will become part of someone else's survival guide" Rett Syndrome is a rare genetic disorder with no current cure. As a parent of a daughter with Rett Syndrome, I wanted to talk to other parents to hear their stories and also give the newly diagnosed a positive and encouraging place to find comfort. Check back towards October ,which is Rett Syndrome Awareness Month each year.
Language:
English
Website:
http://www.teamjovie.cm/
Email:
remarkable@teamjovie.com
Kati Gray & Kendall (USA) – Creating Joy
Duration:00:35:40
Caroline Dempster-Fitzpatrick & Charlotte (AUS) – Parenting, Divorce & Rett (Part 1)
Duration:00:57:22
Caroline Dempster-Fitzpatrick & Charlotte (AUS) – Parenting, Divorce & Rett (Part 2)
Duration:00:27:39
Jodi Amiri & Avery (USA) – Rollercoasters & Rett
Duration:00:43:18
Cora Foster & Olivia and Charlotte (USA) – Twinning with Rett Syndrome
Duration:00:39:46
Jo Huxley & Megan (AUS) – Life With A Late Diagnosis
Duration:00:45:09
Justine Aubuchon & William (USA) – Warrior William
Duration:00:19:24
Mel Lancaster & Katelin (USA) – Trails to a Texas Trial and beyond (Part 2)
Duration:00:24:00
Mel Lancaster & Katelin (USA) – Trails to a Texas Trial and beyond (Part 1)
Duration:00:36:11
Dana Beckett & Maika (AUS) – One Day At A Time
Duration:00:32:30
Naomi Carlise & Olivia (USA) – Settling Into A New Diagnosis
Duration:00:37:26
Welcome to Rett Syndrome
Duration:00:08:14
Welcome to Remarkable!
Duration:00:02:37