TSC Now-logo

TSC Now

Podcasts

a podcast from the TSC Alliance®

Location:

United States

Genres:

Podcasts

Description:

a podcast from the TSC Alliance®

Twitter:

@tsalliance

Language:

English

Contact:

2406384644


Episodes

Episode 49: Community Spotlight – Gloria Triebenbach

12/29/2023
In a final bonus episode in 2023, host Dan Klein connects with Gloria Triebenbach, Chair of the TSC Alliance of the Pacific Northwest and Step Forward to Cure TSC Walk Chair for the walk in Renton, Washington. Gloria describes herself as a mother of an adult daughter with TSC, honorary mother of a 2nd adult … Continue reading Episode 49: Community Spotlight – Gloria Triebenbach →

Duration:00:33:46

Episode 48: Community Spotlight – Kristen Moore

12/26/2023
In a bonus episode, host Dan Klein connects with Kristen Moore, Vice Chair of the TSC Alliance of the Carolinas and Step Forward to Cure TSC Walk Chair for the Carolinas Walk. Kristen and her husband, Douglas, moved to Charlotte in 2012 and welcomed their TSC Warrior Jackson to the world in 2019. Jackson was … Continue reading Episode 48: Community Spotlight – Kristen Moore →

Duration:00:28:04

Episode 47: Closing the Epilepsy Treatment Gap Worldwide

12/22/2023
In this episode, host Dan Klein learns about Pretola Global Health and Consulting Limited and how they advocate for a better future for people living with epilepsy, learning disability and autism around the world. Earlier this year, the TSC Alliance partnered with Pretola on the 4th edition of the Epilepsy Assessment and Management Course, an … Continue reading Episode 47: Closing the Epilepsy Treatment Gap Worldwide →

Duration:00:36:47

Episode 46: Understanding drug resistant epilepsy and treatment options

10/27/2023
In this episode of TSC Now, host Dan Klein interviews Karen Keough, MD, a child neurologist at Child Neurology Consultants of Austin. Dr. Keough defines drug resistant epilepsy (DRE), explains how lack of seizure control can impact someone’s quality of life and shares some treatment options beyond medication, including surgery, dietary therapies and neuromodulation devices. … Continue reading Episode 46: Understanding drug resistant epilepsy and treatment options →

Duration:00:12:49

Episode 45: The 2023 International TSC Research Conference

10/19/2023
On this episode of TSC Now, host Dan Klein recaps the 2023 International TSC Research Conference: Fueling the Future held September 7-9, 2023, in Washington, DC. The conference brought together over 200 researchers from around the world representing a wide array of specialties and the entire spectrum from basic science to clinical research. The comprehensive … Continue reading Episode 45: The 2023 International TSC Research Conference →

Duration:00:41:42

Episode 44: Rare Conversations

4/20/2023
Disclaimer: This episode is sponsored by Nobelpharma America LLC. The opinions expressed are those of the host and guest speaker individually and do not reflect the policies or positions of Nobelpharma. The following content is for informational purposes only. It is not medical advice and is not intended to recommend or suggest a course of … Continue reading Episode 44: Rare Conversations →

Duration:00:38:13

Episode 43: The TSC-STEPS Trial

3/15/2023
In this episode of TSC Now, host Dan Klein dives deep on a new clinical trial in tuberous sclerosis complex (TSC) called TSC-STEPS. TSC-STEPS is a study to learn more about a drug known as Sirolimus and determine if it can prevent seizures and epilepsy in children diagnosed with TSC. The study is currently enrolling … Continue reading Episode 43: The TSC-STEPS Trial →

Duration:00:32:40

Episode 42: Understanding Seizure Clusters

2/3/2023
In the first episode of TSC Now in 2023, host Dan Klein recognizes International Epilepsy Day (February 13, 2023) and Seizure Action Plan Awareness Week (February 13-20, 2023) by learning about seizure clusters, which are episodes of frequent seizure activity that are distinct from a person’s usual seizure pattern. Seizure clusters may also be called … Continue reading Episode 42: Understanding Seizure Clusters →

Duration:00:16:39

Episode 41: Help Today, Help Tomorrow

12/27/2022
In the final episode of TSC Now in 2022, host Dan Klein connects with two incredible advocates for individuals with disabilities and learns how families can find support to help them with both everyday and long-term decisions for their loved ones. First, Dan chats with Kelly Piacenti, Head of Special Care at MassMutual (01:24). Kelly … Continue reading Episode 41: Help Today, Help Tomorrow →

Duration:00:40:36

Episode 40: Totally Super Cool!

9/8/2022
In a special bonus episode of TSC Now, host Dan Klein learns about a new children’s book called Totally Super Cool, which was developed by Nobelpharma America, LLC. This Podcast is being sponsored by Nobelpharma America LLC. The opinions expressed are those of the speakers individually based on their experience and do not reflect the … Continue reading Episode 40: Totally Super Cool! →

Duration:00:13:44

Episode 39: Inspiring a World TSC Community

9/2/2022
In a special two-part episode of TSC Now, host Dan Klein recaps the 2022 World TSC Conference, which was held in Dallas, Texas July 28-31, 2022. In part two, Dan explores the history of tuberous sclerosis complex (TSC) conferences and speaks to inspiring leaders who have shaped the TSC Alliance’s past and will continue to … Continue reading Episode 39: Inspiring a World TSC Community →

Duration:00:30:46

Episode 38: Galvanizing a World TSC Community

8/26/2022
In a special two-part episode of TSC Now, host Dan Klein recaps the 2022 World TSC Conference, which was held in Dallas, Texas July 28-31, 2022. In part one Dan talks to two inspiring and visionary leaders in the tuberous sclerosis complex (TSC) community. On Thursday, July 28, during the opening of the 2022 World … Continue reading Episode 38: Galvanizing a World TSC Community →

Duration:00:38:23

Episode 37: The MILED Trial and the Future of LAM Research

7/1/2022
In this episode of TSC Now, host Dan Klein celebrates Worldwide LAM Awareness Month (#WWLAM) and raises awareness of lymphanhgioleiomyomatosis (LAM) and a pivotal clinical trial in LAM that is enrolling right now. Dan interviews Frank McCormack, MD, Professor and Director of the Division of Pulmonary, Critical Care and Sleep Medicine at University of Cincinnati … Continue reading Episode 37: The MILED Trial and the Future of LAM Research →

Duration:00:22:03

Episode 35: The Past, Present and Future of Autism Research in TSC

4/30/2022
In this episode of TSC Now, host Dan Klein recognizes World Autism Month by taking a deep dive on the past, present and future of autism spectrum disorder (ASD) research in TSC. Dan talks to Shafali Jeste, MD, Chief of Neurology and Las Madrinas Chair at the Children’s Hospital of Los Angeles and Professor of … Continue reading Episode 35: The Past, Present and Future of Autism Research in TSC →

Duration:00:33:45

Episode 34: Celebrating 20 Years of Comedy for a Cure

4/1/2022
In this episode of TSC Now, host Dan Klein recognizes the 20th Anniversary Comedy for a Cure® on Sunday, April 3 at the Avalon in Hollywood, California! To kick off the celebration, Dan learns about the past and present of this amazing event from some dedicated volunteers, and interviews one of this year’s honorees. First, Dan … Continue reading Episode 34: Celebrating 20 Years of Comedy for a Cure →

Duration:00:33:18

Episode 33: Noema, Basimglurant and a New Clinical Trial for Seizures in TSC

2/7/2022
In a very special early episode of TSC Now, host Dan Klein recognizes International #EpilepsyDay and the kickoff of the second annual Seizure Action Plan Awareness Week. In November 2020, a collaboration of three non-profit organizations, the TSC Alliance, Dravet Syndrome Foundation and Lennox-Gastaut Syndrome (LGS) Foundation, launched the Seizure Action Plan (SAP) Coalition to educate people … Continue reading Episode 33: Noema, Basimglurant and a New Clinical Trial for Seizures in TSC →

Duration:00:25:49

Episode 32: The 2022 World TSC Conference

1/28/2022
In the first episode of TSC Now in 2022, host Dan Klein provides an overview of the upcoming 2022 World TSC Conference, co-hosted by Tuberous Sclerosis Complex International (TSCi), which will be held July 28-31, 2022 and will bring together 1,000 participants from around the globe, including families and individuals with TSC, caregivers, healthcare professionals, … Continue reading Episode 32: The 2022 World TSC Conference →

Duration:00:17:33

Episode 31: The Present and Future of TSC & LAM Research

12/22/2021
In the final episode of TSC Now in 2021, host Dan Klein recaps the 2021 Virtual International TSC & LAM Research Conference: Driving Discoveries Beyond Boundaries, presented by Greenwich Biosciences and the Rothberg Institute of Childhood Diseases and co-hosted by the TSC Alliance® and The LAM Foundation. The conference brought together 179 people from 18 countries including … Continue reading Episode 31: The Present and Future of TSC & LAM Research →

Duration:00:31:39

Episode 30: Infantile Spasms Awareness Week 2021

11/30/2021
In Episode 30 of TSC Now, host Dan Klein kicks of Infantile Spams Awareness Week 2021, an initiative from the Infantile Spasms Action Network (ISAN) that runs December 1-7. ISAN is a collaboration of 32 national and international entities, including the TSC Alliance, focused on raising awareness for infantile spasms, a devastating type of seizure … Continue reading Episode 30: Infantile Spasms Awareness Week 2021 →

Duration:00:15:06

Episode 29: The TSC Navigator

10/29/2021
In Episode 29 of TSC Now, host Dan Klein highlights TSC Navigator, an easy-to-use, interactive online tool to help guide individuals and families through the complexities of tuberous sclerosis complex (TSC) across the lifespan, proactively manage their care and live their fullest lives. TSC Navigator was launched in October 2021 and includes sections on “Beginning … Continue reading Episode 29: The TSC Navigator →

Duration:00:24:44