Special Education Advocacy with Ashley Barlow

At this year's COPAA conference I met attorney, Lisa Hernandez, at the coffee bar, and in about 3 sentences, she blew my mind on the topic of employment of people with disabilities. I took her card and invited her on the podcast immediately! If your kid is transition-aged (yes, that's ALL of you in my opinion), you're going to LOVE thinking about employment through this lens. Lisa continued to enlighten me throughout this episode, and I think I'll go back and listen to it again with you all to make sure I totally retain everything she's shared with us! It's just that good! Transcript: https://share.descript.com/view/M2KFRAHbFbL Lisa A. Hernandez is Counsel at Smith Eibeler, LLC. Lisa practices plaintiff-side employment law, representing individuals in all aspects of employment law and litigation, including claims of unlawful termination and discrimination, sexual harassment and whistle-blower retaliation. Lisa also leads the firm’s education law practice, helping families and students with disabilities navigate special education disputes, school-based accommodations, and transition planning to prepare students for employment and independent living.

Today we wrap up the COPAA series with a really great conversation with David Jefferson, the President of the Board of Directors. David's journey to advocacy from the corporate world is super interesting and relatable, and you'll learn how he built a large advocacy business in a few short years. David's got a heart for advocacy - and the right tools to get results for his clients. If you've ever thought about advocacy, this episode is for you!!!! Transcript: https://share.descript.com/view/k7Y2sB9pQMo David Jefferson (Arizona) - As a parent of special needs children, David understands and appreciates all of the difficulties parent’s face as they try and navigate the special education maze. David formed Parent Support Arizona to ensure parents have a local resource and the tools they need to ensure their children’s educational needs are met. Over the past few years, David has sought administrative remedies through the State Department of Education, Office of Administrative Hearings OCR and FERPA. David uses these experiences to provide civil rights advocacy, educational advocacy, parent training and represent parents in IDEA due process hearings in the State of Arizona. In addition he offers self-help tools and resources that allow parents to advocate for themselves and on an equal footing with schools as they advocate for their children’s rights.

If you've ever wanted to crawl inside my brain to have a conversation on special education advocacy, law, and practice, here's your chance. Amy Bonn, consulting attorney, with COPAA, speaks. my. language. Amy and I have a hearty conversation about our jobs as special education attorneys, and it's just too good! Sometimes while I record with guests, I write down the time that a particular quote happens or a quote itself. I had to stop writing on this one, because I'd filled two big Post Its!!!! Tune in for All Things SPED Law and Advocacy today! Transcript: https://share.descript.com/view/LBuZb8GKRdH Amy Bonn, Esq. - Amy is a Nebraska attorney providing legal representation to families of children with disabilities in special education matters. Amy is a summa cum laude graduate of Creighton University School of Law, where she was a member of the board of editors of the Creighton Law Review. She is licensed to practice in state and federal courts in Nebraska. Amy is also a proud parent of children with developmental disabilities. She completed a ten-month traineeship in disability advocacy and leadership at the University Center for Excellence in Developmental Disabilities at the Munroe-Meyer Institute, University of Nebraska Medical Center, where her research focus was on parental advocacy in special education.

Today we roll out a new series on the podcast called COPAA Conversations by chatting with Denise Marshall, the CEO of the Council of Parents, Attorneys, and Advocates. COPAA’s mission is to protect and enforce the legal and civil rights of students with disabilities and their families. The organization offers trainings, an amazing conference, public policy work, legal assistance, really effective committees, and more! It's seriously my one-stop shop for information and community in my work. Denise and I chat about all things COPAA in this episode, and of course, we dive into some of our favorite advocacy tools and ideas! I hope you'll join us and check out COPAA! Transcript: https://share.descript.com/view/Tx38ehX5c7M Denise Stile Marshall, M.S. - Denise has led the Council of Parent Attorneys and Advocates (COPAA) since 2005. She graduated from Johns Hopkins University with a Master of Science in Applied Behavioral Science. Denise has over 40 years’ experience in the field of disabilities in a variety of support, management, and advocacy capacities. She has a wealth of non-profit association management experience and is a dynamic trainer, experienced in leading sessions for participants of diverse abilities and experience levels. Prior to becoming the CEO of COPAA Denise was the Director of Training and Educational Outreach for the national organization TASH from 1995-2005, the Program Manager and trainer for Maryland Leaders in Disability Policy; and a Positive Behavior Support specialist and Director of the National Training Center for The Kennedy Krieger Institute in Maryland among other consulting and management positions. Denise's specific areas of interest are civil right to quality education, positive behavioral supports, prevention and reduction in the use of restraints, abolishment of seclusion and aversive techniques, family supports, grassroots advocacy, self-advocacy, and experiential learning. Denise and her husband are the parents of two children and have three grandchildren, one of whom has Down syndrome.

Ever feel like you need to up the ante on your Negotiation but feel stuck in how to do that? How about a tool that psychologists use to help people get to the root of their own struggles? In today's episode we're going to dive a little deeper into a concept I call "Tactical Empathy," and we'll work on validating the emotions of all of the people at the IEP table. For some people this is super intuitive. For others it isn't, which is okay, because there are a few things you can do to change the vibe of a meeting in a snap!!! Transcript: https://share.descript.com/view/8sQAp7hltLn

We've all been there. The IEP Meeting is going well. Everyone is smiling, the computer system is working, the child is making progress. Then... (record scratch)... things go sideways. In today's episode I talk about one common IEP Pitfall, and it's so obvious. Fortunately, the solution is also super obvious and easy, so I'll walk you through that, too! This is an easy, quick listen before your annual IEP Meeting! Like stuff like this? Consider joining our ABC Course where you get my Negotiation Workshop exclusively!

One of my most favorite and successful strategies has very little to do with negotiation strategy. Rather, it is founded in a desire to make meetings as efficient as possible... but it has a huge positive impact. In today's episode I share my tried and true strategy of requesting a draft of an IEP prior to the meeting and then submitting written questions, comments, and ideas back to the school team prior to the meeting. This strategy was meant to simply be efficient, but it has had a huge impact of IEP meetings for me. I hope you find it helpful, too!

I talk to about one professional a week about an Inclusion case. Attorneys, advocates, outpatient therapists, social workers, pediatricians, and so many other professionals have questions about Inclusion. I'm not only honored that these colleagues call me, but I'm also always excited to geek out about Inclusion and to provide my insight. The only group of folks that I consistently disappoint is the attorneys. Why? Because my approach to inclusion cases is really hands-on. It's practical. It's communicative. It's sometimes even messy. In today's episode, I'll give you some of the practical tips that I've dished out to some of my friends in the last few weeks.

I like to say that the "heart and soul" of special education is the specially designed instruction. This is the instruction that is supposed to be uniquely tailored to the child's needs. This should be drastically different from the accommodations and modifications that students on IEPs get in their general education classrooms and other environments at school. When I recently spoke on Specially Designed Instruction to parents, attorneys, and advocates, I got a ton of questions: Let's dive into these questions in today's episode. Transcript: https://share.descript.com/view/9ZF4KwqNrV4

Oh, the emails I got! I posted about IEEs in my stories a few weeks ago, and I got so many messages from professionals asking about them. I took those questions as a sign that we needed to spend a second more on IEEs here on the pod. So, let's take a step backwards and hammer in on a few basics on Individual Education Evaluations. Fact One: They're free. Fact Two: They're intended to level the playing field for parents in special education. Now that I have you attention, tune in to the whole episode for more!!!! Transcript: https://share.descript.com/view/Mnj8VduBVK7

Last week I attended the COPAA Conference, and a session on IEEs, presented by esteemed VA SPED attorney, Melissa Waugh, I had an epiphany about cognitive testing. Many of my clients that have kids with Down syndrome and other intellectual and developmental disabilities shy away from cognitive/ IQ testing. In this episode, we'll ponder (yet another) reason why this may not be a great idea. I promise to invite Melissa to be on the pod, too, because man alive, she's a wealth of information!

Last week I presented at COPAA, the Counsel for Parents, Attorneys, and Advocates, which is my favorite conference of the year. The topic of my presentation matches this week's podcast topic. Maybe soon I'll invite my co-presenter, the amazing Melissa Waugh, from Virginia's famous and wonderful firm, The Belkowitz Firm, on to the pod. But for now, i want to share an experience with you, and then I want to dive into the shallow end of SDI with you. It has been my recently experience that district's arent's providing SDI, and worse, don't know it. What can you do about it? Transcript: https://share.descript.com/view/8GTndSde5UP

I’ve been on a health journey since I broke my back at the age of 15. I quickly learned that my body responds to natural remedies really, really well. While I started with massage and movement, the onset of my autoimmune symptoms in my 30s led me to exploring nutrition, acupuncture, meditation, and so many more “alternative” medicine options. That’s how I found Dr. Nina Marie Rueda, a naturopathic medicine professional, who has a wealth of information on Instagram and her website! I can’t wait for you to meet her! Dr. Nina-Marie Rueda is a Naturopathic Doctor who focuses on health in the perinatal time. After having been trained as a doula by the midwife who is the Director at her local birth center, she went on to receive her postpartum doula training and lactation educator training from CAPPA. Nina-Marie works with mothers to determine where the imbalances in digestive function, hormones, and through blood chemistry are occurring in order educate on individualized needs to regain optimal health, which can look like regained energy after long bouts of fatigue, ridding PMS symptoms once and for all, enjoying self-control instead of moments of outrage at her toddler, strength, and fat loss, among other things like getting rid of headaches and migraines. With her expertise in nutrition and perinatal health, mothers are able to be transformed into the women they want to be. Paired with her training as a labor doula, postpartum doula, lactation educator, and private chef, Nina-Marie brings a well-rounded approach to care while working with mothers and supporting/educating other doulas to do the same. https://doctorninamarie.com/

If your brain gets overwhelmed with all of the tasks, and if you soul likes lists, this episode is for you! Diagnosis, Therapies, Advocacy, Inclusion, Caregiving... Oh My! In Kelley Coleman's new book, which shares the name of this episode, she shares insights, including advice from experts, on each of those topics (and several others). Her advice includes background information, stories of others, what worked for her own family, lists, templates, and so many other tools! This is a book you'll want on your bookshelf... and Kelley's a friend you're going to want and need for the next several years! Transcript: https://share.descript.com/view/kVsK3cwFroT Kelley Coleman is a feature film development executive turned author and advocate for parent caregivers and individuals with disabilities. Her book Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports draws upon over a decade of advocacy, gained through her own journey parenting a child with multiple disabilities. Kelley lives in Los Angeles with her husband, two boys, and her son’s trusty service dog. https://www.kelleycoleman.com/https://www.instagram.com/hellokelleycoleman/https://www.facebook.com/kelley.coleman.56Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports available March 13, 2024: https://www.kelleycoleman.com/books

Not only do I love where our friend, Katie Larew, lives (#SoCal)... I love EVERYthing Katie Larew shares over at Assistive Technology for Dyslexia! AT is such a wide-ranging topic, and AT supports can positively impact outcomes for SO many students. However, there remain so many myths about and impediments to getting good technological supports at school. Thank heavens for Katie! In today's episode we talk all things AT, and we also fangirl about the sun and surf!!!! Join us in this fun, light-hearted episode! And also I promise to have Katie back when I'm not essentially mid-root-canal! Transcript: https://share.descript.com/view/8rlqyiqG2zZ Katie Larew is the founder of Assistive Technology for Dyslexia, LLC. She began working in the field of Special Education in 2007 as a classroom Special Education Teacher. As an Assistive Technology Specialist, Katie has worked with students from elementary, middle, and high school. She holds a Master’s Degree in Special Education as well as additional certifications as an IMSLEC certified Orton-Gillingham Teacher, CERI Certified Structured Literacy Dyslexia Interventionist and RESNA certified Assistive Technology Professional. Katie serves on the Board of Directors for The International Dyslexia Association, San Diego Branch and is an active member of the International Dyslexia Association, Center for Effective Reading Instruction, and Rehabilitation Engineering and Assistive Technology Society of North America. Katie works with students, parents, and educators by providing consultations, customized step-by-step virtual training, and professional development. Training topics focus on Assistive Technology tools to support the areas of Reading, Writing, Note-Taking, Organization, and Executive Functions. Katie’s mission is to help spread greater awareness of Assistive Technology to help students build their confidence and independence. Katie is a wife & mom to two under five. In her free time, she loves spending time with her family and exploring Southern California. https://assistivetechnologyfordyslexia.com/https://www.instagram.com/assistivetechnologyfordyslexia/https://www.facebook.com/assistivetechnologyfordyslexia

Sometimes you meet somehow whose life parallels yours so significantly that its hard to believe. If you've had any discussions regarding inclusion at your school, you're going to want to listen to what Suzanne Lezotte has to say in today's episode. Suzanne feels so passionate about inclusive practices that she wrote a book, "Raising Owen: An Extra-ordinary memoir on motherhood." Suzanne's outlook on inclusion, life, and motherhood is important and so relatable. Hope you love this week's episode!!! Transcript: https://share.descript.com/view/kbEsgkh2M3G Born and raised in Michigan in a family of nine kids, Suzanne has been writing since she was a child. She moved to Los Angeles after college and began a corporate career in PR and marketing. When she and her husband welcomed their first child, Owen, they had no idea the new world of parenting they would embark upon. His diagnosis of Down syndrome at seven days old turned her world upside down. She became an early advocate for inclusion and adopted the motto “life will not be a special needs class.” Her son is now 20 years old and attends Ventura College part-time while applying for university programs for adults with disabilities. She has three kids, and resides in Westlake Village, CA. Her book, “Raising Owen: A Memoir on Motherhood” is published by Aristata Press. Website:https://www.suzannelezotte.com/Instagram:https://www.instagram.com/suzannelezotte/Facebook:https://www.facebook.com/suzannelezotteLinkedIn:https://www.linkedin.com/in/suzannelezotte/

We're keeping with our theme of caregiver supports this week... but today we're also focusing on supporting our children. This week's conversation is one of my favorites of all time. Lauren McKenzie is the real deal. She's a former teacher (yes, she's taught every grade from K-12... I told ya she's the real deal), and now she's a coach that helps parents and schools navigate the messiness of behavior and regulation! Lauren's approach is straightforward, respectful, humble, and effective, and I can't wait for you to learn about it! If life ever has you like 😫, this episode's for you! Yes, I know, that's me, too!!!! Transcript: https://share.descript.com/view/yn22e7YdH7k Adults get emotionally worn out when kids are difficult to deal with, and this wreaks havoc in every area of their life. Lauren McKenzie is an adult-child relationship strategist. Using a proven framework, she shows grown ups how to take control of their emotions and positively engage with kids so they can gain cooperation, escape overwhelm, and show up as the best version of themselves. A certified professional coach with the heart of a teacher, Lauren loves equipping and encouraging others. When she's not coaching or speaking, you can find Lauren enjoying her family or catching up with a friend over a steaming hot cup of coffee. Win With Kids Course:https://mckenziecoaching.onlinecoursehost.com/courses/winwithkids?affiliateId=jVRJqngJxkWP4EFKuE8Z&type=course&linkId=8vSf41YWZyraVIyb2ZhQWebsite:https://mckenziecoachingandconsulting.coInstagram:http://instagram.com/laurenmckenziecoachingLinkedIn:https://www.linkedin.com/in/laurencmckenzie/Facebook:http://facebook.com/laurenmckenziecoaching

When I planned our Conference this year, I knew I wanted at least one person that could not only talk about caregiver fatigue and teacher burn out but also to provide us with strategies! And that's how I found Bryan Holyfield! Bryan's own journey as teacher-turned-trainer and his experience in helping parents that are struggling to manage all the things is so inspiring and helpful. Bryan's outlook on life is so inspiring. He believes in doing the work, celebrating the success, and listening to yourself. I can't wait to share today's episode with you! Transcript: https://share.descript.com/view/MEfKxAszEV0 Bryan Holyfield is married to his high school sweetheart, Hannah. They met as missionary kids whose families were serving in Moscow, Russia. Together, they are raising their four sons to be men of character and faith. Bryan has a bachelor's degree in Secondary Social Sciences and a Master’s in Russian and East European Studies. He was a successful social studies teacher and soccer coach before he founded Holyfit Coaching and transitioned into full time fitness and nutrition coaching. Bryan is a Certified Personal Trainer through NFPT and Certified Nutrition Coach through Precision Nutrition. Bryan played soccer in college but let fatherhood, education and career get in the way of protecting his health. He suffered a low back injury in his late 20’s that made him realize he needed to start taking better care of his body to be able to be the man and father he wanted to be! When the pandemic hit three years later, he saw so many colleagues and friends allow their health to suffer. Bryan knew that he had the experience and communication skills to have an impact on a great number of people. Bryan is passionate about building strong and healthy leaders to the glory of God with a global and missional impact. Outside of work, Bryan stays active coaching his son’s sports teams, hiking, duck hunting, playing soccer and disc golf, and a leader in his local church. If you ever need to know about the best coffee or hiking in North Georgia, Bryan has the inside scoop for you. Website: http://www.holyfitcoaching.com Instagram: https://instagram.com/bryanholy.fit

Inclusion Starts Now? Yes please! That’s the name of my guest, Kayla Coburn’s, business, and it’s the name of my mantra for Jack’s Kindergarten Year! I can’t wait for you to meet special educator and consultant, Kayla Coburn, who is so passionate and similarly-minded about inclusive education. Her ideas and experiences are so valuable, and she’s doing such a wonderful job at advocating for inclusive education and supporting districts that commit to it. Kayla and I talk IEP Teamwork (and I recommend our favorite book on Teamwork to her), roadblocks to inclusion, and even “sneaky” ways to start carving away at inclusive opportunities for kids at school. Kayla speaks my language, and I can’t wait for you to hear it! Transcript: https://share.descript.com/view/k8x7h2ybkok Meet My Guest: Kayla Coburn is a former para, former special education teacher, former education specialist, now inclusion specialist and founder of Inclusion Starts Now, LLC. My passion for inclusion has shown thorugh my entire career. Website: http://www.inclusionstartsnow.com Instagram: https://www.instagram.com/inclusionstartsnow/ Facebook: https://www.facebook.com/inclusionstartsnow LinkedIn: https://www.linkedin.com/in/kayla-coburn-78970685/

Ever wanna hear two people that are so passionate about special education that they sometimes lost sleep over it geek out over it?! Taylor Day’s energy for supporting students with autism is contagious – so contagious, in fact, that she is one of our very few repeat guests on the podcast, AND I’ve invited her to present at our Special Education & Advocacy Conference. In today’s episode Dr. Tay and I talk about behavior supports, Pathological Demand avoidance, the concierge model of medical and therapeutic intervention, special education advocacy, and SO much more. This is the kind of conversation I have on the phone with friends while I drive my kids to swimming, take walks, and put away laundry. This is about as behind-the-scenes as it gets, and you’re going to love it! Transcript: https://share.descript.com/view/5aT6eFG2qSJ Meet My Guest: Dr. Taylor Day is a licensed psychologist specializing in neurodivergent affirming care for autistic children and their families, including very early diagnosis and early intervention. She has a Ph.D. in clinical psychology and is the CEO and founder of Dr. Tay Concierge Clinical Care. Her practice integrates The Whole Family Approach, a process she created utilizing evidence-informed principles after seeing a gap in autism care. Her passion for child psychology and her focus on autism is in many ways tied to her own personal experience growing up with a brother who was diagnosed at 23 months of age. Website:http://drtaylorday.comInstagram:https://www.instagram.com/the.dr.tay/Facebook:https://www.facebook.com/the.dr.tay/LinkedIn:https://www.linkedin.com/in/the-dr-tay/