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When Life Gives You Parkinson's

Curiouscast

10 million people in the World have been diagnosed with Parkinson’s disease. Yet, so few people seem to know much about it. Host, Larry Gifford, shares his personal journey into what it’s like to live and work with Parkinson’s disease as a 40-something husband and father with a career.

10 million people in the World have been diagnosed with Parkinson’s disease. Yet, so few people seem to know much about it. Host, Larry Gifford, shares his personal journey into what it’s like to live and work with Parkinson’s disease as a 40-something husband and father with a career.
More Information

Location:

United States

Networks:

Curiouscast

Description:

10 million people in the World have been diagnosed with Parkinson’s disease. Yet, so few people seem to know much about it. Host, Larry Gifford, shares his personal journey into what it’s like to live and work with Parkinson’s disease as a 40-something husband and father with a career.

Language:

English


Episodes

Tips for Thriving with Young Onset Parkinson’s Disease - WPC2019 | 9

5/15/2019
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In June, I will be traveling to Kyoto, Japan for the 5th World Parkinson Congress(WPC). WPC is a global Parkinson's event that opens its doors to all members of the Parkinson's community, from neurologists and researchers to those living with the disease. Since my diagnosis in August 2017, I’ve launched the podcast When Life Gives YouParkinson’s. As an extension of that podcast, I have teamed up with the World Parkinson Coalition to help preview WPC2019. At the congress, there will be many...

Duration:00:35:38

The Best Diet for People with Parkinson’s- WPC2019 | 8

5/1/2019
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In June, I will be traveling to Kyoto, Japan for the 5thWorld Parkinson Congress(WPC). WPC is a global Parkinson's event that opens its doors to all members of the Parkinson's community, from neurologists and researchers to those living with the disease. Since my diagnosis in August 2017, I’ve launched the podcast When Life Gives YouParkinson’s. As an extension of that podcast, I have teamed up with the World Parkinson Coalition to help preview WPC2019. Since my diagnosis, the most...

Duration:00:36:30

Navigating Japanese Language and Culture - WPC2019 | 7

4/24/2019
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In June, I will be traveling to Kyoto, Japan for the 5World Parkinson Congress(WPC). WPC is a global Parkinson's event that opens its doors to all members of the Parkinson's community, from neurologists and researchers to those living with the disease. Since my diagnosis in August 2017, I’ve launched the podcast When Life Gives YouParkinson’s. As an extension of that podcast, I have teamed up with the World Parkinson Coalition to help preview WPC2019. Traveling to a foreign country can be...

Duration:00:44:39

Let’s Talk About Sex and PD - WPC2019 | 6

4/17/2019
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In this episode I speak with Gila Bronner, founder and former Director of the Sex Therapy Service at Sheba Medical Center in Israel. She is also a sex therapist at the Movement Disorders Institute of the medical center. She tells me Neurologists, nurses, and other health professionals, in general, are not taught about sexual issues patients may have, where to refer them when issues arise, or how to talk to patients about it. Bronner has proven there is an association between Parkinson’s and...

Duration:00:36:44

World Parkinson's Day

4/11/2019
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In this special episode of When Life Gives You Parkinson’s, the Parkinson’s community from around the world come together to share what they believe you should know about this disease. I also interview Matt Eagles. He was diagnosed with Parkinson’s when he was 8-years-old. He just helped to create and launch a new initiative called “Parky Life.” Follow me, Larry Gifford Twitter: @ParkinsonsPod Facebook: Facebook.com/ParkinsonsPod Instagram: @parkinsonspod Follow Co-host and Producer...

Duration:00:45:01

Sharing stories and searching for sleep - WPC2019 | 5

4/10/2019
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In this episode, I talk with Dr. Aleksander Videnovic, a neurologist specializing is movement disorders and sleep medicine at Massachusetts General Hospital and Harvard Medical School. Dr. Videnovic will be speaking at WPC and hosting a roundtable, both of which will focus on Tips and Tricks to Managing Sleep Disorders in Parkinson’s. This link will take you to the full program schedule. The first tip he shares is to report poor sleep to your neurologist and general practitioner. He says...

Duration:00:23:08

The Plight of Parkinson's on Super Awesome Science Show

4/5/2019
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Super Awesome Science Show (SASS) talks with Larry Gifford about his journey with Parkinson's and find out how he manages to cope both physically and emotionally. His story is both compelling and also inspiring and will reveal why his podcast has been designated at one of Apple Podcast’s best of 2018. In our SASS class, we’re going to explore the efforts to find answers to help those with Parkinson’s Disease. We speak with Rachel Dolhun, the Vice-President of Medical Communications with the...

Duration:00:29:22

Keep Calm and Research On - WPC2019 | 4

4/3/2019
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David Sangster is an Ambassador for World Parkinson Congress. On April 3, 2019 David is having Deep Brain Stimulation (DBS) surgery. It’s a treatment used for late-stage Parkinson’s disease that involves surgically implanting electrodes into the brain. The electrodes deliver small electric pulses which help reduce slow movement, tremor and stiffness. David was diagnosed in 2011 and lives with severe tremoring and twitching, dyskinesia, rigidity and more. He chatted with me on the podcast a...

Duration:00:27:23

Is Parkinson’s a genetic condition? WPC2019 | 3

3/27/2019
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One of the exciting areas of research as it pertains to understanding Parkinson’s disease is in genetics. Dr. Matt Farrer is a Geneticist at the Djavad Mowafaghian Centre for Brain Health. In 2004, he found the first genetic connection to Parkinson’s, LRRK2, and his team has sincee identified about dozen others. Dr. Farrer is the first to admit Parkinson’s is not a genetic condition, but as with everything biological there is a genetic component, “The genetic component in Parkinson’s is...

Duration:00:33:32

Positive Impacts of Parkinson’s. WPC2019 | 2

3/13/2019
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After he was diagnosed with Parkinson’s, Tim Hague Sr. won the first season of “The Amazing Race Canada” and wrote a book called Perseverance: The Seven Skills You Need to Survive, Thrive and Accomplish More Than You Ever Imagined. In this episode, Tim and I chat about diagnosis, acceptance, finding balance, asking for help, building a community and why it is important for people with Parkinson’s to have a mindset of an athlete. Then we talk to Elaine Book, a social worker at the Pacific...

Duration:00:36:46

Hello. Konnichiwa. WPC2019 | 1

2/27/2019
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In June, I will be traveling to Kyoto, Japan for the 5 World Parkinson Congress (WPC). WPC is a global Parkinson's event that opens its doors to all members of the Parkinson's community, from neurologists and researchers to those living with the disease. Since my diagnosis in August 2017, I’ve launched the podcast When Life Gives You Parkinson’s. As an extension of that podcast, I have teamed up with the World Parkinson Coalition to help preview WPC2019. In this episode, Jill Ames-Carson,...

Duration:00:32:34

Finding Hope in Parkinson’s | 12

2/20/2019
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I’m a fairly hopeful guy. Sure, I have dark moments as we all do but, hope wins out more often than not. You might be wondering how I can have hope or be hopeful while dealing with an incurable, progressive brain disease like Parkinson’s. It’s a fair question. I don’t know that I have the answers, but in this episode I go about searching for a better understanding of the role that hope plays in the Parkinson’s community. What I discover is that hope is the one driving force that binds us all...

Duration:00:38:53

Extra Dosage: Travelling and Catching Up With Family

2/13/2019
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This is a special bonus episode of When Life Gives You Parkinson’s which we are calling “Extra Dosage.” Full episodes will be release every other Wednesday. In between, Niki and I will share new information, original interviews and extra material that provide more context to topics raised in the previous episodes of the podcast. We’ll also answer your questions. Feel free to write us with questions at parkinsonspod@curiouscast.ca. I was diagnosed with Parkinson’s in August 2017. I haven’t...

Duration:00:31:20

Parkinson’s and the Caregiver’s Journey | 11

2/6/2019
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In this episode of When Life Gives You Parkinson’s we explore the role of the caregiver. Seeing as I’m a person with Parkinson’s and not a caregiver, my caregiver and wife Rebecca is featured prominently along with my co-host Niki Reitmayer and other caregivers Noel MacDonald and John Parkhurst. At the end of the episode, I chime in with a quick interview with Dr. Robert Duff about what caregivers need to do to make sure they’re taking care of themselves. At the end of the episode, Niki...

Duration:00:48:30

Extra Dosage | Peace of mind: Insights from a neuropsychologist

1/30/2019
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This is a special bonus episode of When Life Gives You Parkinson’s which we are calling “Extra Dosage.” Full episodes will be release every other Wednesday. In between, Niki and I will share new information, original interviews and extra material that provide more context to topics raised in the previous episodes of the podcast. We’ll also answer your questions. Feel free to write us with questions at parkinsonspod@curiouscast.ca. Parkinson’s doesn’t necessarily lead to cognitive...

Duration:00:23:43

Parkinson’s Doesn’t Have to be a Career Killer | 10

1/23/2019
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In this episode, Niki and I talk to my colleagues and bosses about how their adjusting to my PD diagnosis, get advice from my neurologist Dr. Jonathon Squires, Neuropsychologist Dr. Robert Duff, and employment lawyer Lior Samfiru. I also chat with Jim Redmond about being a teacher with PD and Jonny Acheson about adjustments he’s had to make as an emergency room doctor who was diagnosed with Parkinson’s. Follow me, Larry Gifford Twitter: @ParkinsonsPod Facebook:...

Duration:00:51:43

Extra Dosage | Hope, Fear, Frustration and Levodopa

1/16/2019
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This is a special bonus episode of When Life Gives You Parkinson’s which we are calling “Extra Dosage.” Full episodes will be release every other Wednesday. In between, Niki and I will share new information, original interviews and extra material that provide more context to topics raised in the previous episodes of the podcast. We’ll also answer your questions. Feel free to write us with questions at parkinsonspod@curiouscast.ca. One of the main intentions behind this podcast was to...

Duration:00:19:36

Fatherhood and Parkinson’s | 9

1/9/2019
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In this episode, you will meet my 9-year old son Henry, hear his infectious laugh and find out the one burning question he has about Parkinson’s. I think Henry might just want a normal Dad, not one with Parkinson's , my co-host Niki Reitmayer and my wife Rebecca try to convince me otherwise. On Saturdays, Henry and I go on adventures. We hang out, run errands, laugh, talk, and just spend time together. Father-son time means even more for me since my Parkinson’s diagnosis. I don’t always...

Duration:00:43:49

Extra Dosage | Christmas Greetings

12/26/2018
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This is a special bonus episode of When Life Gives You Parkinson’s which we are calling “Extra Dosage.” Full episodes will be release every other Wednesday. In between, Niki and I will share new information, original interviews and extra material that provide more context to topics raised in the previous episodes of the podcast. We’ll also answer your questions. Feel free to write us with questions at parkinsonspod@curiouscast.ca. ‘Twas the night before Christmas and all through the...

Duration:00:02:41